Why am I still here
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About this listen
What do you do when the world is a blur, and the answers feel out of reach? I open up about being born blue and tiny, growing up unsure why I couldn’t see like other kids, and the moment a determined grandmother pushed us to seek the truth. That path led to Dr. David Tracy, a diagnosis of oculocutaneous albinism with astigmatism, and a powerful reframe: my eyes work differently, and my worth is unchanged. From there, the story widens into community and skill-building. I share how connections to the Massachusetts Commission for the Blind and intensive training at the Carroll Center transformed daily life from orientation and mobility to assistive technology and self-advocacy. The practical lessons matter: how to navigate a city safely, read and use accessible tools, and communicate needs clearly. The emotional lessons matter just as much: replacing isolation with belonging, and fear with agency. Faith runs through each chapter, not as a shortcut but as a steady guide. I reflect on the quiet ways doors opened at the right time and how purpose can emerge in the same space as pain. If you’re newly diagnosed, waiting on clarity, or supporting someone with vision loss, you’ll find both real-world resources and encouragement grounded in lived experience. And if you’re carrying old wounds, I preview where we’re headed next: a vulnerable look at instability and healing that medicine alone can’t resolve. If this story helps you or someone you love, share it with a friend, subscribe for part two, and leave a review with one lesson you’re taking forward. Your words help others find hope and the tools that make life work.