In this episode of Beyond the Wheeze, I’m joined by Jeremy Saunders, Canadian actor, podcaster, and public speaker, to explore what it truly means to live with cystic fibrosis and how he has used storytelling, humor, and vulnerability to break health stigma.

Jeremy shares what day-to-day life with CF looks like, including managing complex treatments, navigating travel, and balancing physical and mental health. We talk about how new medications like Trikafta have changed the landscape of CF care, while also acknowledging the realities that many people still face. Jeremy also discusses his “expiry date” mindset, embracing mortality, and choosing to live fully despite uncertainty.

We dive into the origins and evolution of Sick Boy, the role of humor in serious conversations, and why authentic, sometimes uncomfortable dialogue is essential for building understanding and community. Jeremy also reflects on receiving the Meritorious Service Medal, his work with Breathless, and the projects he continues to pursue to raise awareness and support others living with chronic illness.

This episode offers honest perspective for anyone living with a chronic condition, supporting someone who is, or interested in how storytelling and openness can change the way we talk about health.

🎧 Sick Boy Podcast: https://www.sickboypodcast.com/

🎧 Breathless Podcast: https://www.cysticfibrosis.ca/breathless

🎧 More episodes: https://beyondthewheeze.ca/podcast

00:30 – Introduction to Jeremy Saunders
00:32 – Jeremy’s career and achievements
01:17 – Disclaimer and welcome
01:42 – Jeremy’s experience with cystic fibrosis
03:10 – Understanding cystic fibrosis beyond the lungs
06:46 – Daily life with CF
11:37 – Traveling with cystic fibrosis
16:42 – Embracing mortality and living fully
25:11 – Advancements in CF treatment
28:45 – Humor in serious illness
28:54 – The importance of authentic conversations
29:59 – Navigating social interactions during hardship
31:40 – Humor and seriousness in Sick Boy
32:47 – Crossing the line in vulnerable conversations
37:01 – The evolution and impact of Sick Boy
40:33 – Receiving the Meritorious Service Medal
44:12 – The mission behind Breathless
48:27 – Living with uncertainty and optimism
51:55 – The power of open dialogue
56:13 – Upcoming projects and final thoughts

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