ALS - To The Moon and Back — Episode 14 cover art

ALS - To The Moon and Back — Episode 14

ALS - To The Moon and Back — Episode 14

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This one starts exactly where you’d expect us to begin… microphones, crockery, and a bit of light chaos before we even get to ALS 😄 From there, we head straight into my trip to Uluru — which, honestly, turned into something far more meaningful than I expected. There’s airport moments (including a very honest rant about accessible toilets), unexpected kindness from strangers that absolutely undoes me, and a Qantas flight attendant who may or may not now be part of our extended podcast family. Also, turns out if you casually mention ALS mid-flight, you might end up with champagne and a personal concierge experience… not complaining.

But the heart of this episode is what happened out at Uluru. The walk around the base, the “brain” formation, and a meditation that landed at exactly the right time — all of it coming together in this strange, powerful way. There’s something about that place that’s hard to explain, but you feel it. I talk about “leaving the bags behind” — the stuff you carry that you don’t need anymore — and having a moment to just sit in gratitude that I was even there, doing it. It’s a bit woo-woo, a bit grounded, and very real all at once.

We also get into the bigger stuff — the reality of ALS in Australia, the gaps in support depending on your age, and how wildly unfair that can be. There’s a raw conversation around choice, dignity, and what the end of life can look like with this disease. But in true form, it’s not all heavy — there’s humour, honesty, and that constant thread of “keep making plans” running through it. Because at the end of the day, that’s what this is about — living, even when things are hard.

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