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This one starts exactly where you’d expect us to begin… microphones, crockery, and a bit of light chaos before we even get to ALS 😄 From there, we head straight into my trip to Uluru — which, honestly, turned into something far more meaningful than I expected. There’s airport moments (including a very honest rant about accessible toilets), unexpected kindness from strangers that absolutely undoes me, and a Qantas flight attendant who may or may not now be part of our extended podcast family. Also, turns out if you casually mention ALS mid-flight, you might end up with champagne and a personal concierge experience… not complaining.

But the heart of this episode is what happened out at Uluru. The walk around the base, the “brain” formation, and a meditation that landed at exactly the right time — all of it coming together in this strange, powerful way. There’s something about that place that’s hard to explain, but you feel it. I talk about “leaving the bags behind” — the stuff you carry that you don’t need anymore — and having a moment to just sit in gratitude that I was even there, doing it. It’s a bit woo-woo, a bit grounded, and very real all at once.

We also get into the bigger stuff — the reality of ALS in Australia, the gaps in support depending on your age, and how wildly unfair that can be. There’s a raw conversation around choice, dignity, and what the end of life can look like with this disease. But in true form, it’s not all heavy — there’s humour, honesty, and that constant thread of “keep making plans” running through it. Because at the end of the day, that’s what this is about — living, even when things are hard.

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This episode kicks off the way all great conversations do…

With smugness over a 10-minute morning routine and a deep philosophical question:
👉 Can you feel better after just 10 minutes?
Answer: no. But you can feel superior. And honestly, that counts.

Then we get into it…

Somehow (as always), we cover:

• Teeth, mercury fillings, and why Lisa now has a gap — with a surprisingly good backstory
• The wild world of dentistry when you’re navigating ALS
• Why your body sometimes knows before your brain catches up
• The absolute chaos of modern healthcare access (great… if you can get it)

And yes… we absolutely detour into:

• The manosphere
• Social media influence
• Politics, privilege, and the occasional rant that probably needed to happen

This episode really circles around one big idea:

Pay attention to what your body is telling you.

Whether it’s:

• a gut feeling in a medical appointment
• something not quite right physically
• or just that quiet internal “this isn’t it”

Teeth matter more than you think

This episode goes deep into something not talked about enough:

• dental health
• inflammation
• toxins
• and how all of that may connect into bigger systemic issues

Also, because this is our podcast and we do not stay in one lane:

• A very proud dog mum moment (Ony absolutely smashing it 🏆)
• The realities of breeding vs temperament
• Why dogs might just be one of the best emotional support systems on the planet

And then… the real moments

• A tough day physically and emotionally
• What happens when pain, fatigue, and everything else collide
• Letting yourself cry instead of holding it all together

And one of the most beautiful lines of the episode:“That which you cannot say must be cried out.”

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Thank you for listening to ALS - To the Moon and Back.
If this episode resonated, please share it with someone who might need it.
You can follow, subscribe, and stay connected as we continue exploring life, friendship, ALS, treatments, hope, and all the messy, meaningful bits in between.
Take care of yourselves — and each other — and we’ll see you next episode.

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New Episode: ALS to the Moon and Back – Episode 12

Ohhh my… this one’s a bit of a ride.

Portia and I kick things off completely off track (as usual), wander through grief, a bit of politics, a few strong opinions, some questionable humour… and then eventually remember we’re meant to be talking about ALS 😅

We get properly stuck into what I’m calling the “why we can’t” attitude — especially in healthcare. You know the one… where the answer’s no before anyone’s even had a crack at finding a yes.

And I’ll be honest, I think I’ve hit my limit with it.

When your time suddenly feels very real and very precious, being mucked around, brushed off, or told something can’t be done — it lands a bit differently.

There’s also a bit of a rant (fair warning) about being stood up for appointments — twice 🙄 — driving all over the place for things that don’t happen, and that general feeling of “you’ve got to be kidding me.”

Plus a classic moment in a mobility shop where everyone’s trying to help… but no one’s actually listening. I may or may not have lost my patience over socks. It happens.

Portia, as always, brings the laughs, a bit of perspective, and the occasional “pull your head in” moment — which, to be fair, is sometimes needed.

But… it’s not all doom and gloom.

There’s actually some really good news in here.

I’ve been accepted into a clinical trial that’s looking at treating what’s actually going on in the body — not just managing symptoms. And that feels pretty bloody significant.

We chat about what that means, what’s coming next, and that weird mix of hope and disbelief when something positive actually happens.

Anyway… it’s a bit messy, a bit funny, a bit raw — very us.

Have a listen ❤️

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Thank you for listening to ALS - To the Moon and Back.
If this episode resonated, please share it with someone who might need it.
You can follow, subscribe, and stay connected as we continue exploring life, friendship, ALS, treatments, hope, and all the messy, meaningful bits in between.
Take care of yourselves — and each other — and we’ll see you next episode.