Andy Stevenson's Rett Syndrome Advocacy Journey
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Andy Stevenson's Rett Syndrome Advocacy Journey
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About this listen
Join us on The Brain Camaraderie podcast as we explore the inspiring journey of Andy Stevenson, a former PGA golf professional turned rare disease advocate. Discover how Andy's personal experiences with Rett syndrome led him to co-found Reverse Rett, a UK charity dedicated to accelerating treatments for this devastating disorder. In this episode, Andy shares the emotional and logistical challenges faced by families, the power of community in fundraising, and the hope for a brighter future through gene therapy.
For more information: https://linktr.ee/thebraincamaraderie
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