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FIECON Patient Perspectives

FIECON Patient Perspectives

Written by: FIECON
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About this listen

 In our series of podcasts, FIECON team members engage with patient advocates and thought leaders to explore the burden, unmet needs, patient journey, and potential future treatments for specific diseases, with the aim of gaining a deeper understanding of the patient's perspective, particularly for rare diseases. At FIECON, we are dedicated to ensuring that life-changing treatments reach the patients who truly need them, while also increasing awareness and amplifying the patient voice to make a meaningful difference.FIECON Biological Sciences Science
Episodes
  • The patient journey | Idiopathic Pulmonary Fibrosis(IPF)

    The patient journey | Idiopathic Pulmonary Fibrosis(IPF)
    Sep 11 2025

    In the latest episode of the “Patient Perspectives” Podcast, Karl Freemyer, Head of BD at FIECON, a Herspiegel company, speaks with Simon Anthony Richey, a patient living with idiopathic pulmonary fibrosis (IPF).

    Simon’s journey into diagnosis was unusual – what started as a seemingly minor symptom led to a scan that revealed fibrosis in his lungs. Unlike many patients who endure years of misdiagnosis, Simon’s path to clarity was comparatively swift. Yet, the real challenge came after: navigating treatment access.

    Listen to the episode to find out: How many consults did Simon take before receiving clarity? How did access barriers and drug costs impact his treatment decisions? What innovations are most urgently needed in IPF over the next five years?

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    27 mins
  • The patient journey | Chronic Back Pain

    The patient journey | Chronic Back Pain
    Jun 11 2025

    In the latest episode of “Patient Perspectives” Podcast, Karl Freemyer, Head of BD at FIECON, a Herspiegel company, talks to Chris Wade, a patient living with chronic lower back pain, whose life changed after a car accident.
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    22 mins
  • The patient journey | Citrullinaemia Type 1

    The patient journey | Citrullinaemia Type 1
    Oct 21 2024

    In this episode of, Daniel Evans , HEOR Associate at FIECON, speaks with Charlotte Keys, a patient advocate, whose son Lucas was diagnosed with Citrullinaemia Type 1, and Jonathan Alexander Gibson, Campaigns Lead at Metabolic Support UK .

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    26 mins
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