Episodes

  • Eye on the Cure Podcast | Episode 98: Jonathan & Josh Steinberg

    Eye on the Cure Podcast | Episode 98: Jonathan & Josh Steinberg
    Jan 9 2026
    Josh Steinberg and his father, Jon, talk with host Ben Shaberman about their close-knit family's journey with Josh's vision loss and eventual diagnosis of retinitis pigmentosa, as well as their volunteer leadership roles in driving the Foundation's mission. Jon is Chair of the Foundation's Science Committee and Vice Chair for Science on the Board. Josh is the former Chair of the Strategic Council and also a Board director.
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    47 mins
  • Beacon Therapeutics Launches Clinical Trial for Bilateral Administration of XLRP Gene Therapy

    Beacon Therapeutics Launches Clinical Trial for Bilateral Administration of XLRP Gene Therapy
    Dec 18 2025
    The company has also fully enrolled the Phase 2/3 VISTA clinical trial for its XLRP gene therapy.
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    2 mins
  • Eye on the Cure Podcast | Episode 96: Dr. Deniz Dalkara

    Eye on the Cure Podcast | Episode 96: Dr. Deniz Dalkara
    Dec 5 2025
    Dr. Deniz Dalkara, a research director at INSERM in France, talks to hose Ben Shaberman about her emerging gene-agnostic, gene therapy designed to restore cone-mediated vision in people with advanced retinitis pigmentosa. Known as SPVN20 and clinically developed by SparingVision, the treatment recently moved into a clinical trial in Europe. Dr. Dakara also discusses her earlier work in retinal gene and optogenetic therapy development.
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    44 mins
  • Belite Bio to Seek FDA Approval for its Stargardt Disease Drug

    Belite Bio to Seek FDA Approval for its Stargardt Disease Drug
    Dec 2 2025
    Tinlarebant slowed disease progression by 36 percent in the Dragon Phase 3 clinical trial.
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    3 mins
  • Opus Genetics Launches Gene Therapy Clinical Trial for Best Disease

    Opus Genetics Launches Gene Therapy Clinical Trial for Best Disease
    Nov 14 2025
    The Foundation funded preclinical studies for the approach and launched Opus.
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    3 mins
  • Eye on the Cure Podcast | Episode 95: Greta Streimikyte

    Eye on the Cure Podcast | Episode 95: Greta Streimikyte
    Nov 14 2025
    Greta Streimikyte, a blind para-athletic running champion from Ireland, talks to host Ben Shaberman about growing up with substantial vision loss from retinopathy of prematurity and her competitive running career. Greta has won gold in the women's 1500 meters at the 2018 and 2021 European Para Athletic Championships and is a three-time Paralympian.
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    21 mins
  • Eye on the Cure Podcast | Episode 94: Dr. Victoria Claire

    Eye on the Cure Podcast | Episode 94: Dr. Victoria Claire
    Oct 31 2025
    October 31, 2025. Dr. Victoria Claire has commissioned more than 200 sculptures, received an honorary doctorate, and is pursuing a PhD. She talks with host Ben Shaberman about her journey with retinitis pigmentosa, and how blindness has provided her with new and profound insights into herself and perceiving the world. Visitors to her current exhibition, "The Sense of Sculpture" (Oct. 18 - Nov. 1) at The Art House in Wakefield, England, are interacting with her sculptures tactilely in complete darkness.
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    54 mins