How We Fail and Can Help: Patients with Intellectual/Developmental Disabilities

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How We Fail and Can Help: Patients with Intellectual/Developmental Disabilities

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About this listen

Hoang(Mai) Pham, MD, MPH—President and CEO of the Institute for Exceptional Care and former Chief Innovation Officer at Center for Medicaid and Medicare Services—joins us to discuss the urgent need to fix how our healthcare system serves people with autism and other developmental disabilities. Drawing from her personal experience as a mother and her professional expertise in health policy, Dr. Pham shares candid, actionable advice for caregivers: how to find the right doctors, navigate fragmented services, and advocate effectively—especially amid recent Medicaid cuts. We also explore trauma, abuse risks, life transitions, and promising tech solutions. An essential listen for families, clinicians, and changemakers alike.

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