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How We...Special Needs

How We...Special Needs

Written by: My Kabuki Girl
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About this listen

Welcome to How We... Special Needs, a podcast about navigating life with Special Needs and how it transforms families.

This podcast aims to share how we talk about Special Needs, how we live with Special Needs, and how Special Needs have changed our families.

I’m Minie, an Italian special needs mum living in Sydney, sharing my personal diary as I walk alongside my daughter’s journey with Kabuki Syndrome. But this podcast isn’t just about us - it’s about us.

Through heartfelt stories, interviews with other special needs parents, and honest conversations, we’ll explore the challenges, victories, and emotions that come with raising extraordinary children. Together, we’ll share the tears, the laughter, and the questions we might be too afraid to ask.

Whether you’re part of the special needs community or simply curious about this roller coaster called life, you’re welcome here. This podcast offers a raw, relatable, and unconventional window into the world of disabilities, genetic conditions, and medical families.

I aim to release new episodes weekly or fortnightly, and I’d love to hear your thoughts and feedback along the way.


Let’s celebrate the love, strength, and stories that make this journey unforgettable. 💚

© 2026 How We...Special Needs Parenting Relationships Self-Help Social Sciences Success
Episodes
  • New Year, New Podcast

    New Year, New Podcast
    Jan 14 2026

    For the second season of the podcast “How we…special needs”, I thought of keeping the tone a bit more conversational, talking about topics that matter to us (me and you guys!) the most, sharing with you the blog posts, maybe doing fewer interviews (as I’m not that great an interviewer!).

    Surely, I will keep sharing my and our experience with Kabuki syndrome and neurodivergence.


    What do you think? Is there a topic you’d like me to discuss with you?

    Send me a feedback!

    Support the show

    Did you like this episode? Let me know! 💕
    Don’t forget to subscribe for more stories of love, strength, and Kabuki Syndrome.

    Follow me on TikTok, Instagram and YouTube @MyKabukiGirl and share your thoughts!

    Check the website www.mykabukigirl.com for merchandise and so much more!👀

    Stay safe, ciao! ☺️
    Show More Show Less
    8 mins
  • A journey with CNF | Interview with Simone Eyles

    A journey with CNF | Interview with Simone Eyles
    Oct 13 2025

    Hi guys, I'm Minie, #Italian special needs mum from #Sydney! 🇮🇹🇦🇺Welcome to our channel, where I share our daughter’s journey with #Kabukisyndrome.
    In this podcast episode, I interview Simone, a mum and entrepreneur who shares her son's journey with Congenital Nephrotic Syndrome of the Finnish type.
    The interview touches the complexities of kidney transplants on babies, the relationship between siblings, the creation of an agency aimed at raising awareness on disabilities and more.
    Are you a special needs parent? Are you interested in being interviewed on How We...Special Needs? Let me know in the comments! 👇

    You can find Simone here:
    ➡️ https://www.disinfluencer.co
    ➡️ https://www.instagram.com/disinfluencer.co/?hl=en

    Send me a feedback!

    Support the show

    Did you like this episode? Let me know! 💕
    Don’t forget to subscribe for more stories of love, strength, and Kabuki Syndrome.

    Follow me on TikTok, Instagram and YouTube @MyKabukiGirl and share your thoughts!

    Check the website www.mykabukigirl.com for merchandise and so much more!👀

    Stay safe, ciao! ☺️
    Show More Show Less
    40 mins
  • A journey with Auto inflammatory disease | Interview with Sharon Kensell

    A journey with Auto inflammatory disease | Interview with Sharon Kensell
    Sep 12 2025

    Hi guys, I'm Minie, #Italian special needs mum from #Sydney! 🇮🇹🇦🇺Welcome to our channel, where I share our daughter’s journey with #Kabukisyndrome.
    In this podcast episode I interview Sharon, my first guest who will speak about the challenges of having a genetic chronic condition herself, while also advocating for her daughter (and son).
    In this interview she touches the very important topic of medical gaslight and how hard it was for her to get a proper diagnosis, despite being dismissed many times by medical professionals who didn't recognise her condition.
    Are you a special needs parent? Are you interested in being interviewed on How We...Special Needs? Let me know in the comments! 👇

    You can find Sharon and her organisation here:
    Website ➡️ https://anzfaid.org
    Facebook ➡️ https://www.facebook.com/share/1CNWAmFxSF/?mibextid=wwXIfr
    Instagram ➡️ https://www.instagram.com/autoinflammatory_aus_nz?igsh=MW9xdjEzbDZhYTVicA==

    Send me a feedback!

    Support the show

    Did you like this episode? Let me know! 💕
    Don’t forget to subscribe for more stories of love, strength, and Kabuki Syndrome.

    Follow me on TikTok, Instagram and YouTube @MyKabukiGirl and share your thoughts!

    Check the website www.mykabukigirl.com for merchandise and so much more!👀

    Stay safe, ciao! ☺️
    Show More Show Less
    41 mins
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