• YouTube LIVE recording of petition presentation January 21st 2026
    Jan 21 2026

    petition presentation live stream link https://www.youtube.com/live/PN6-ewFs-00?si=UBsftv5p3FLnMc7m


    although the petition has been presented we are leaving the document and its additional resources up in case anybody wants to use it as a template and also for a reference. I know everything I'm proposing saves the system massive amounts of money and problem solves disability and long viral disease deficits

    https://bit.ly/Marcia_petition

    https://www.thecanary.co/opinion/2025/12/19/me-void/

    Also so you have it because it's my lived experience, here's my recent op-ed

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    11 mins
  • Jan 21st Petition Presentation In Person!
    Jan 16 2026

    Petition presentation is Wednesday the 21st 11:00 to 11:30 a.m. Pacific standard Time. The zoom room will be open from 10:45 to 11:45. I do explain how that will work in this episode as well as what it feels like in this lead up to the in-person presentation of the petition that I've been working to get signatures on for a year.


    BTW we are still accepting signatures until late Tuesday night. We are currently at 1358 signatures and would very much like to get up to 1500 or higher before we present


    Here is the zoom virtual attendance of the petition next Wed Jan 21st and the petition https://bit.ly/Marcia_petition & my Dec op-ed https://www.thecanary.co/opinion/2025/12/19/me-void/


    Here is the CTV article I mention about the United Nations https://www.ctvnews.ca/health/article/united-nations-report-says-canada-should-repeal-maid-for-people-with-non-terminal-illness/


    Here are social media links to the infographic that I posted

    Facebook

    https://www.facebook.com/share/p/14QVw39pnTT/

    X

    Blue sky

    Instagram

    https://www.instagram.com/p/DTlPzmdAeaX/?igsh=Nzkzd3V1ZHZkNW0w

    Tumblr

    https://www.tumblr.com/iammadelinepod/805925264282550272/join-our-cloud-hd-video-meeting?source=share

    YouTube

    https://youtube.com/shorts/Bf1ZAWrSyN4?si=dH73WvXaGAtk74x3

    #MyalgicEncephalomyelitis #myalgicE #disability #chronicillness #chronicpain

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    9 mins
  • Energy Overdrawn
    Jan 9 2026

    episode done at a hospital treatment. kind of a recording in the wild lol


    Links I mentioned


    Petition

    https://bit.ly/Marcia_petition


    Canary opted December 19th 2025

    https://www.thecanary.co/opinion/2025/12/19/me-void/


    Audit of UK Hospital Doctors’ Knowledge and Experience of Myalgic Encephalomyelitis

    https://www.mdpi.com/1648-9144/57/9/885



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    9 mins
  • Jan 1, 2 AM, 2026
    Jan 1 2026

    photo is of first blossoms that I saw yesterday! That usually lifts my spirits Because I love spring. But it's the wee hours in the morning where pensive and melancholy seem to be emotions that I'm experiencing. So in this episode I've had to puzzle out why I am feeling this way. I think it's partly because all that's ahead of me right now is fighting without anything to look forward to Because I don't know how far the current GoFundMe money gets me into January. And it's unfortunate that that impeded my ability to enjoy my friends this evening. But hand to mouth like this tends to even blot out the good things sometimes. And that's frustrating and it seems to be amplifying my melancholy. often focusing on things like an upcoming MP constituency appointment can lift me with that purpose. But that's not working right now. ultimately I think I just feel alone even when with people because of what's happening to me


    I talk about the op-ed https://www.thecanary.co/opinion/2025/12/19/me-void/


    and Petition

    https://bit.ly/Marcia_petition



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    17 mins
  • pt 2 my op-ed Canary UK
    Dec 20 2025

    My op-ed is out! https://www.thecanary.co/opinion/2025/12/19/me-void/ (Linkbio)


    If you could share the op-ed everywhere you can that would be amazing. Posts I've made for easy sharing

    Insta https://www.instagram.com/p/DSc6ciGiQv0/?igsh=MXFnemtrd3Y3eGx6eA==

    Fb https://www.facebook.com/share/p/1AKdjYyQ72/

    Twitter https://x.com/i/status/2002061384209867072

    Blue sky https://bsky.app/profile/madelinenerd.bsky.social/post/3mae64ynmms2l


    It getting published so close to Christmas means having it shared by people like you is extra extra important for I'm not sure how much of an impact it has on the petition and the GoFundMe(which currently runs out mid-January which means I would have to stop life maintaining supports. that's kind of eating my brain).


    For anyone you are sending it to who doesn't know about my situation, the op-ed does link to 2 articles that this publication wrote last December about my situation which gives a pretty good sense of what's the what. and of course That also means I've been verified six ways to Sunday about these things


    I don't have the brain power to read this last op-ed edit, so I'll be interested hearing what you think


    I got to have a flyby encounter with David Eby yesterday, who's my MLA, and once again ask for a constituency appointment which I've been begging for for the better part of almost 2 years now. Cuz that's the only way I get proper supports and can stop begging for my life on the internet🤞


    I did tell him about the petition hoping that might speed up the constituency appointment process https://bit.ly/Marcia_petition . Also I did my best in a crowded loud environment to express that the petition encapsulates easy solutions. I didn't have the rain power to say how much they save the system money both directly in people like me not slamming into the ministry of Health but also indirectly by the The 36%-37% ( https://academic.oup.com/ofid/advance-article/doi/10.1093/ofid/ofaf533/8244677?login=false )of the population getting long covid having correct instruction and support so they don't unnecessarily become disabled get removed from the tax base.


    Oh well. Hopefully I'll get a chance to say it in person at a constituency appointment. 🤞


    Warmest holiday wishes

    Marcia AKA Madeline

    #MyalgicE #meaction #christmas #longcovid #christmastime

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    3 mins
  • My CanaryUK op-ed is out
    Dec 19 2025

    My op-ed is out! https://www.thecanary.co/opinion/2025/12/19/me-void/ (Linkbio)


    If you could share the op-ed everywhere you can that would be amazing. Posts I've made for easy sharing

    Insta https://www.instagram.com/p/DSc6ciGiQv0/?igsh=MXFnemtrd3Y3eGx6eA==

    Fb https://www.facebook.com/share/p/1AKdjYyQ72/

    Twitter https://x.com/i/status/2002061384209867072

    Blue sky https://bsky.app/profile/madelinenerd.bsky.social/post/3mae64ynmms2l


    It getting published so close to Christmas means having it shared by people like you is extra extra important for I'm not sure how much of an impact it has on the petition and the GoFundMe(which currently runs out mid-January which means I would have to stop life maintaining supports. that's kind of eating my brain).


    For anyone you are sending it to who doesn't know about my situation, the op-ed does link to 2 articles that this publication wrote last December about my situation which gives a pretty good sense of what's the what. and of course That also means I've been verified six ways to Sunday about these things


    I don't have the brain power to read this last op-ed edit, so I'll be interested hearing what you think


    I got to have a flyby encounter with David Eby yesterday, who's my MLA, and once again ask for a constituency appointment which I've been begging for for the better part of almost 2 years now. Cuz that's the only way I get proper supports and can stop begging for my life on the internet🤞


    I did tell him about the petition hoping that might speed up the constituency appointment process https://bit.ly/Marcia_petition . Also I did my best in a crowded loud environment to express that the petition encapsulates easy solutions. I didn't have the rain power to say how much they save the system money both directly in people like me not slamming into the ministry of Health but also indirectly by the The 36%-37% ( https://academic.oup.com/ofid/advance-article/doi/10.1093/ofid/ofaf533/8244677?login=false )of the population getting long covid having correct instruction and support so they don't unnecessarily become disabled get removed from the tax base.


    Oh well. Hopefully I'll get a chance to say it in person out of constituency appointment.


    Warmest holiday wishes

    Marcia AKA Madeline

    #MyalgicE #meaction #christmas #longcovid #christmastime

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    3 mins
  • Merry Merry
    Dec 18 2025

    where I talk about pushing my energy envelope so that I can have some good experiences in the face of all the hardship I'm going through. yeah it's making my pain and exhaustion dramatically worse but it's really nice feeling to to have a sense of that accomplishment and to be able to use my talents to do something that helps other people feel good in the face of the difficulties they're going through

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    15 mins
  • The Fine Art Of Distraction
    Dec 17 2025

    where I talk about The fine art of distraction, a particularly bad episode of pain, the perils of not having housekeeping supports, fear around running out of the GoFundMe money that I use for treatments, and the holiday season and my birthday which are both highly emotional times


    I talk about the petition https://bit.ly/Marcia_petition


    and the GoFundMe https://gofund.me/6d981312


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    11 mins