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Insightful Moments: My VIBE

Insightful Moments: My VIBE

Written by: PTC Therapeutics
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About this listen

Everyone in the rare disease community has a story and every individual, every parent, every caregiver has a unique story to tell. Insightful Moments: My VIBE is here to tell those stories. We want to tell YOUR real-life stories and experiences from the rare disease community to inspire and remind listeners that we’re all in this together.2023 Hygiene & Healthy Living Physical Illness & Disease Social Sciences
Episodes
  • Friedreich's Ataxia Symposium Part 1
    Sep 17 2025

    Welcome back to Insightful Moments: My VIBE, presented by PTC Therapeutics. In this episode, Emily Hintze attended the Friedreich's Ataxia Symposium hosted by the Friedreich's Ataxia Research Alliance and Children's Hospital of Philadelphia in King of Prussia, Pennsylvania, where she spoke with a number of people who are affected by Friedreich's Ataxia, or FA. You’ll hear from several symposium attendees as they share stories about their journeys with FA, the connection between physical and mental health, and so much more. So join us for this insightful episode of Insightful Moments: My VIBE, brought to you by PTC Therapeutics.

    For more information, visit the Insightful Moments website at www.PTCinsightfulmoments.com.

    Follow Us

    • Twitter @PTCBio
    • Facebook @PTC Therapeutics
    • Instagram @PTCTherapeutics

    Presented by PTC Therapeutics
    www.ptcbio.com


    Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

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    58 mins
  • The Parenting Challenge
    Dec 16 2024

    Welcome back to another episode of Insightful Moments: My VIBE, presented by PTC Therapeutics. It is Day 2 at the 28th annual PPMD conference for physicians, caregivers, and families affected by Duchenne Muscular Dystrophy in Arizona. In today’s episode, Paula Orandash is speaking with individuals and families affected by DMD about how they’ve learned to cultivate and maintain their own independence as well as find support when they needed it. You’ll hear Darrell discuss the challenge of being a single parent to a child with Duchenne. You’ll also hear from Jim and Audra as they tell us about transitioning their son from a manual to a motorized wheelchair. Last, we have Hulda, who tells us about how she learned to help herself, and how she’s using what she learned to encourage others in the most amazing way. So press play and join us for another thoughtful episode of Insightful Moments: My VIBE, brought to you by PTC Therapeutics.

    For more information, visit the Insightful Moments website at www.PTCinsightfulmoments.com.

    Follow Us

    • Twitter @PTCBio
    • Facebook @PTC Therapeutics
    • Instagram @PTCTherapeutics

    Presented by PTC Bio

    www.ptcbio.com


    Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

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    59 mins
  • Friedreich's Ataxia Symposium Part 2
    Dec 5 2023

    Welcome back to another installment of Insightful Moments: My VIBE, presented by PTC Therapeutics. Previously, Emily Hintze attended the Friedreich's Ataxia Symposium hosted by the Friedreich's Ataxia Research Alliance and Children's Hospital of Philadelphia in King of Prussia, Pennsylvania, where she spoke with a number of people who are affected by Friedreich's Ataxia, or FA. For this part 2 episode you’ll hear from two guests in the F.A. community as they share insightful stories about their journeys with FA, and how they have turned advocacy into action. So press play and join us for this wonderful part 2 episode of Insightful Moments: My VIBE, brought to you by PTC Therapeutics.

    For more information, visit the Insightful Moments website at www.PTCinsightfulmoments.com.

    Follow Us

    • Twitter @PTCBio
    • Facebook @PTC Therapeutics
    • Instagram @PTCTherapeutics

    Presented by PTC Therapeutics
    www.ptcbio.com


    Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

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    32 mins
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