This #HeartMonth, we are honoured to share a deeply moving conversation with a very special friend of The Canadian SADS Foundation, Walker Frahm, CEO of The US SADS (Sudden Arrhythmia Death Syndromes) Foundation .

Walker opens up with raw honesty about the sudden loss of his daughter, Lavinia, and how this tragedy reshaped his life’s path. He speaks to the unique experience of a father’s grief: the instinct to hold everything together, the delayed wave of emotion, and the choice to lean in and lead.

This episode is a powerful exploration of finding purpose in pain, the critical need for specific community after loss, and how a father’s love fuels the relentless work to protect other families.

Walker’s story is a testament to turning heartbreak into hope and action.

To hear his full story of love, loss, and leadership, listen now on all platforms:

YouTube - ⁠https://tinyurl.com/CanadianSADSYouTube⁠

Instagram - ⁠https://tinyurl.com/CanadianSADSInstagram⁠

Spotify - ⁠https://tinyurl.com/CanadianSADSSpotify⁠

Apple - ⁠https://tinyurl.com/CanadianSADSApple⁠

Amazon - ⁠https://tinyurl.com/CanadianSADSAmazon

⁠#SADS #HeartMonth #GeneticHeartCondition #SuddenCardiacArrest #SCAPrevention #Grief #Fatherhood #PatientAdvocacy #HeartHealth #MentalHealth #TurningPainIntoPurpose

From unexpected heart failure at 23 to founding a national patient community.

Today we are speaking with Marc Bains, co-founder of HeartLife Foundation. He shares his powerful journey from diagnosis to transplant and into advocacy. This episode explores how community, research, and patient partnership can transform life after a devastating cardiac diagnosis and why building support is critical for anyone living with heart disease.

To hear the full story of resilience and how Heart Life was born, listen now on all platforms:

Facebook - https://tinyurl.com/CanadianSADSFacebook

YouTube - ⁠https://tinyurl.com/CanadianSADSYouTube

⁠Instagram - ⁠https://tinyurl.com/CanadianSADSInstagram⁠

Spotify - ⁠https://tinyurl.com/CanadianSADSSpotify⁠

Apple - ⁠https://tinyurl.com/CanadianSADSApple⁠

Amazon - ⁠https://tinyurl.com/CanadianSADSAmazon⁠

#SADS #HeartFailure #Cardiomyopathy #HeartTransplant #GeneticHeartCondition #Cardiology #InheritedArrhythmia #PatientAdvocacy #HeartHealth #HeartLife #SurvivorStory #LivingWithHeartDisease #PatientPartner #HeartResearch #CanadianHealth

What if we rebranded exercise with a SADS condition as play?

Join us as health coach Janet Omstead shares her joyful approach to building a sustainable movement and exercise routine. This episode dives into practical strategies to overcome fear, find motivation, and rediscover the pleasure of moving within your limits.

To build a complete and safe foundation, we recommend listening to part 1 of this 2 part exercise series featuring pediatric cardiologist Dr. Robert Hamilton.

Listen to this episode now:
YouTube - https://tinyurl.com/CanadianSADSYouTube
Instagram - https://tinyurl.com/CanadianSADSInstagram
Spotify - https://tinyurl.com/CanadianSADSSpotify
Apple - https://tinyurl.com/CanadianSADSApple
Amazon - https://tinyurl.com/CanadianSADSAmazon

#SADS #BrugadaSyndrome #CPVT #LongQT #ARVC #HypertrophicCardiomyopathy #Cardiology #InheritedArrhythmia #ExerciseWithHeart #HeartHealth #HealthCoach #BehaviorChange #Play #JoyfulMovement #LivingWithSADS