When Carmine was told he had hypertrophic cardiomyopathy, he thought he'd never see his kids grow up. Sixteen years later, he's living his best life.

He spent years living in fear, isolating himself, and convinced his heart condition would eventually take everything from him. But after 16 years of struggling, a new medical treatment changed everything. Now he's climbing staircases in Italy, traveling the world with his wife, and feeling better than he has in decades.

In this inspiring conversation, Carmine opens up about the emotional toll of living with HCM, the importance of speaking up and asking for help, and why he believes there's hope for everyone living with this condition.

His story is proof that a diagnosis doesn't have to be the end of your story. Sometimes, it's just the beginning.

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#LetsTalkSADSLive #SADS #HCM #HypertrophicCardiomyopathy #HeartHealth #Cardiomyopathy #HeartWarrior #CardiacCare #Hope #MedicalTreatment #HeartCondition #LivingWithHCM #Cardiology #PatientStory #HeartDisease #Gratitude #SecondChance #AmazingPeople

Somewhere right now, a young woman is being told her heart palpitations are just anxiety. She is being sent home without an ECG. She is being told she is too young and too low risk for anything to be wrong.

She might believe them. She also might go years without knowing she has an inherited heart condition.

Dr. Danna Spears, an electrophysiologist at the Peter Munk Cardiac Centre, sees these women every day. In this episode, she talks about the fear of never growing old, the worry about having children, the struggle of living with a visible defibrillator and the confusion around menopause and hormone therapy.

But mostly she talks about hope. Because the answers are better than most women have been told. And because no one has to do this alone.

This episode is for every woman who has ever been told to stop worrying. Your heart matters. And so do you.

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#LetsTalkSADSLive #SADS #WomensHeartHealth #InheritedHeartConditions #Cardiomyopathy #Channelopathy #ARVC #LongQT #ICD #Defibrillator #HeartDiseaseInWomen #NotJustAnxiety #WomensHealth #PatientVoice #HeartCommunity #YouAreNotAlone #PregnancyAndHeartDisease #MenopauseAndHeartHealth

When Patients Help Design Research, Outcomes Improve.

No lab coat required. Just lived experience and a seat at the table.

Anne Simard shares how patient partners have rewritten study protocols, redesigned unusable wearables, and told engineers their "sexy" new tech was a disaster. She also tackles the awkward question: should patients get paid for their expertise?

Because when patients help design research, outcomes improve for everyone.

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#LetsTalkSADSLive #SADS #PatientPartners #PatientEngagement #ClinicalResearch #LivedExperience #PatientVoice #NothingAboutUsWithoutUs #FutureOfHealthcare