You wouldn't expect a 16 year old with Congenital Heart Defect (CHD) to say a roller coaster is one of her favorite stories, but here we are!

Amelia was born with Double Outlet Right Ventricle and has had three open heart surgeries, but ask her if she'd trade her CHD for a "normal" life, and her answer might surprise you.

In this uplifting conversation, Amelia opens up about finding her people at Campfire Circle, advocating for other cardiology patients through the Chameleon app, and why she actually sees her heart condition as something that made her life better, not worse.

Amelia's story is proof that resilience looks a lot like joy.

Watch the full episode and follow us on our socials!

Facebook - https://tinyurl.com/CanadianSADSFacebook

YouTube - https://tinyurl.com/CanadianSADSYouTube

Instagram - https://tinyurl.com/CanadianSADSInstagram

Spotify - https://tinyurl.com/CanadianSADSSpotify

Apple - https://tinyurl.com/CanadianSADSApple

Amazon - https://tinyurl.com/CanadianSADSAmazon

#LetsTalkSADSLive #SADS #CHD #CongenitalHeartDefect #DoubleOutletRightVentricle #Fontan #HeartWarrior #CampfireCircle #PatientPartner #YouthAdvocacy #RareDisease #HeartCondition #TeenWithCHD #Cardiology #TransitionToAdultCare #SelfAdvocacy #LivingWithCHD #HeartPalpitations #RollerCoaster #AmazingPeople

Gene therapy. One injection. No going back.

Brian O'Mahoney, the first person in Ireland to receive any gene therapy, has lived with severe hemophilia B his entire life.

In this deeply personal conversation, Brian shares what it really means to make an irreversible medical decision, and how basing his choice on data from just three patients became the leap of faith that changed everything.

Now, 44 years into leading patient advocacy across Ireland, Europe, and globally, Brian is helping others navigate the same impossible question: When do you take the one shot you'll ever get?

This episode offers a rare look inside the mind of someone who chose to rewrite their own biology, and the resilience required to help an entire community do the same.

Watch the full episode and follow us on our socials!

Facebook - https://tinyurl.com/CanadianSADSFacebook

YouTube - https://tinyurl.com/CanadianSADSYouTube

Instagram - https://tinyurl.com/CanadianSADSInstagram

Spotify - https://tinyurl.com/CanadianSADSSpotify

Apple - https://tinyurl.com/CanadianSADSApple

Amazon - https://tinyurl.com/CanadianSADSAmazon

#LetsTalkSADSLive #SADS #GeneTherapy #Hemophilia #HemophiliaB #PatientAdvocacy #RareDisease #GeneticCondition #MedicalInnovation #PatientStory #ChronicIllness #LivingWithHemophilia #BleedingDisorders #GeneTherapyTrial #IrreversibleDecision #SharedDecisionMaking #PatientEmpowerment #MedicalBreakthrough #ClinicalTrial #HealthcareInnovation #PatientAdvocate #RareDiseaseCommunity #Resilience #MedicalDecisions

Wearable technology that can predict heart failure hospitalizations days in advance is just one of the groundbreaking innovations Dr. Heather Ross, a world-renowned cardiologist and heart failure specialist, is bringing to patients.

In this powerful conversation, Dr. Ross shares how a near-death experience on a remote Antarctic mountain transformed her approach to care, the revolutionary digital tools that are changing how we monitor heart health, and her mission to bring equitable heart care to rural and Indigenous communities across Canada, all from a Pelican case.This episode offers a rare glimpse into the mind of a physician who has dedicated her life to meeting patients where they are, both physically and emotionally, and the digital tools making that possible.

Watch the full episode and follow us on our socials!

Facebook - https://tinyurl.com/CanadianSADSFacebook

YouTube - https://tinyurl.com/CanadianSADSYouTube

Instagram - https://tinyurl.com/CanadianSADSInstagram

Spotify - https://tinyurl.com/CanadianSADSSpotify

Apple - https://tinyurl.com/CanadianSADSApple

Amazon - https://tinyurl.com/CanadianSADSAmazon

#LetsTalkSADSLive #SADSCanada #HeartFailure #WearableTech #RemoteMonitoring #DigitalHealth #HealthEquity #Cardiology #HeartHealth #PatientCare #HeartDisease #HeartHealthMatters #Cardiologist #HeartFailureAwareness #MedTech #HealthTech #AIinHealthcare #Wearables #PreventiveCare #RuralHealth #IndigenousHealth #DigitalTransformation #TrueHF #AppleWatch #HeartMonitoring #CardiacCare #HealthcareInnovation #PatientEmpowerment #HeartBrainConnection #NearDeathExperience #TestYourLimits