Greg Grunberg is best known for his role as X-wing pilot Snap Wexley in “STAR WARS”, as well as “STAR TREK”, “A STAR IS BORN” and alongside Al Pacino in the Barry Levinson film ‘PATERNO.’ In addition to his many memorable series regular roles on shows “HEROES”, “CASTLE ROCK”, “LOST”, “ALIAS” and “FELICITY”.

But what a lot of folks don't know is Greg's son Jake lives with Epilepsy. Greg is a huge advocate for those with Epilepsy! Greg is also an advocate for those who are caregivers.

Currently Grunberg stars alongside Kevin Smith in the cult classic “MAX RELOAD & THE NETHER BLASTERS” as well as the much beloved “BIG ASS SPIDER”.

Greg has written pilots & films and co-wrote the graphic novel series “DREAM JUMPER” for Scholastic. Book 2 is available everywhere now.

Grunberg hosted and produced alongside Kevin Smith the pop-culture talk show “GEEKING OUT” for AMC and currently is a staple on the popular gameshow “25 WORDS OR LESS”.

He has a few podcasts “TALK ABOUT IT”, “VESTED INTEREST”, & “AN ACTOR, COMEDIAN & A MUSICIAN WALK INTO A BAR”. Currently he is shooting his popular YouTube series “THE CAREGIVER“ for the Epilepsy community.

As a drummer, Grunberg started his celebrity rock band “THE ACTION FIGURES“ (TheActionFiguresBand.com) with fellow actors Jesse Spencer, Adrian Pasdar, Jack Coleman, and Scott Grimes benefiting TalkAboutIt.org, his foundation to raise awareness for people with Epilepsy as his eldest son has the condition.

Grunberg has been voted one of the most interesting actors to follow on Twitter & IG.

My Guest - Greg Grunberg

Connect with Greg

Talk About it - https://talkaboutit.org/

Talk About it Podcast - https://talkaboutit.org/epilepsy/podcast

The Caregiver Series - http://www.thecaregiverseries.com

Connect with the Mindful Inspiration Champion

Website: https://www.themindfulchampion.com

Facebook: https://www.facebook.com/themindfulchampion

Instagram: https://www.instagram.com/mindfulchampion/

Follow My Daughter Aria

Facebook: https://www.facebook.com/ariasarmy

GoFundMe: https://gofund.me/5e2f5fb4

Tune In to the Mindful Inspiration Podcast

YouTube: https://www.youtube.com/channel/UCmQ0RoJXlPh9flty9Zds5Kg

Spotify: https://open.spotify.com/show/0nUrUnETqKQKGXJvLbkTck

Apple Podcasts: https://podcasts.apple.com/tw/podcast/mindful-inspiration-champion/id1566268734?l=en

Stitcher: https://www.stitcher.com/show/mindful-inspiration-champion

Google Podcasts: https://podcasts.google.com/feed/aHR0cHM6Ly9mZWVkcy5yZWRjaXJjbGUuY29tLzk0MzhiMzFiLWFhZDgtNDIwMC1iMmFjLWFjZDAxMjE4YWJmYg?hl=en

Mike comes from a career in public policy, international development and strategy.  Previous roles have included establishing a new program at New America, a DC think tank, Budget & Planning at both the Gates Foundation & Emerson Collective, healthcare consulting at BCG, developing world university support for the World Bank Group, managing a refugee program for the International Catholic Migration Commission in Zimbabwe, and teaching math in Peace Corps Namibia.

Graglia has an MBA from Columbia where he was a Bronfman Fellow, an MA from Johns Hopkins School of Advanced International Studies where he was a Soros Fellow, and a BS in mathematics from Gonzaga University, S.J.

Graglia lives with his wife Ashley & two sons in Palo Alto, California.

About SRF

Michael Graglia’s son Tony was diagnosed with SYNGAP1 in 2018, he was 4.  Together with his wife, Ashley Evans, he founded the SynGAP Research Fund, 501c3, to accelerate the science around SYNGAP1 in order to make sure there is a therapy developed in a time frame that matters for his son, and children like him.  SRF expects to have granted over $3M to scientific labs by the end of 2022.

There are over 1,055 cases of Syngap globally, we are aware of ~330 cases in the USA.  SYNGAP1 is a disease that has multiple symptoms. 

Our children present with epilepsy, autism, intellectual disability, sleep disorder, & numerous other symptoms.  SynGAP patients are disabled for life requiring huge investments from society & sacrifices from their families. 

The patients are often on a range of medications for epilepsy, sleep & other symptoms.

The disease results from spontaneous (not inherited) mutations on the critical neurological gene, SYNGAP1.  We all have two copies of every gene, one from each parent.  As a result of the mutation causing one of those genes to be unable to make the associated protein our patients only have 50% of the necessary SynGAP protein.  It is the lack of this protein that causes this disease and all their symptoms.

SRF has multiple programs to serve patients and their families:

* We have a patient ambassador program to support newly diagnosed families.


* We engage with scientists via grants, conferences and our Webinar series.


* We are rolling out a cutting edge medical records-based digital natural history study on September 1st, 2020 in partnership with Citizen.


* SRF has a Scientific Advisory Board that includes a number of leading scientists and leaders in the genetic epilepsy space.


SRF is governed by a board of twelve different families of affected individuals.

Connect with SYGNAP1 Research Fund

Website: https://www.syngapresearchfund.org/

Facebook: https://www.facebook.com/cureSYNGAP1

Instagram: https://www.instagram.com/curesyngap1/

Twitter: https://twitter.com/cureSYNGAP1

Youtube: https://www.youtube.com/c/CureSYNGAP1/featured

LinkedIn: https://www.linkedin.com/company/curesyngap1/

Amazon Smile: https://smile.amazon.com/?ref_=smi_ge_switch_cust

Tik Tok: https://www.tiktok.com/@curesyngap1?

Connect with the Mindful Inspiration Champion

Website: https://www.themindfulchampion.com

Facebook: https://www.facebook.com/themindfulchampion

Instagram: https://www.instagram.com/mindfulchampion/

Follow My Daughter Aria

Facebook: https://www.facebook.com/ariasarmy

GoFundMe: https://gofund.me/5e2f5fb4

Tune In to the Mindful Inspiration Podcast

YouTube: https://www.youtube.com/channel/UCmQ0RoJXlPh9flty9Zds5Kg

Spotify: https://open.spotify.com/show/0nUrUnETqKQKGXJvLbkTck

Apple Podcasts: https://podcasts.apple.com/tw/podcast/mindful-inspiration-champion/id1566268734?l=en

Stitcher: https://www.stitcher.com/show/mindful-inspiration-champion

Google Podcasts: https://podcasts.google.com/feed/aHR0cHM6Ly9mZWVkcy5yZWRjaXJjbGUuY29tLzk0MzhiMzFiLWFhZDgtNDIwMC1iMmFjLWFjZDAxMjE4YWJmYg?hl=en

Shine Music is a 501c3 nonprofit with a mission to create universally designed, all-inclusive live music events.

Their event, the Shine Music Festival, combines the staples of a typical music festival, comprehensive accessibility plans and cutting-edge adaptive technology, to create a barrier-free spaces that allow people of all abilities the opportunity to share in the groove together. Our events are always free to ensure everyone has the ability to attend.

Shawn Satterfield, is an Inclusion Architect, her passion is creating equitable, inclusive and accessible spaces. To achieve this, she creates brands with a purpose, brands that inspire and support change-makers to integrate inclusion in their business, so together we can create a world where everyone is represented.

Her work:

Mozaro makes sure your digital assets, which convey your product and service offerings, via the web or printed materials, are accessible to all.

Shine Music, a non-profit organization, creates all accessible events where people of all abilities can collectively share in the power of live music.

Inclusion Architects® is the umbrella of which this work is done. Simply put – we work toward building an inclusive world.

Connect with Shawn:

Shine Music Festival

Website: https://www.shinemusicfestival.com/

Facebook: https://www.facebook.com/shinemusicfestivaldenver

Twitter: https://twitter.com/shinemusicfest

Instagram: https://www.instagram.com/shinemusicfestivaldenver/

Linkedin: https://www.linkedin.com/company/shine-music-llc

Youtube: https://www.youtube.com/c/ShineMusicFestivalDenver

Tik Tok: https://www.tiktok.com/@shinemusicfestival

Mozaro

Website: https://www.mozaro.com/

Linkedin: https://www.linkedin.com/company/mozaro

Facebook: https://www.facebook.com/mozarocms

Connect with the Mindful Inspiration Champion

Website: https://www.themindfulchampion.com

Facebook: https://www.facebook.com/themindfulchampion

Instagram: https://www.instagram.com/mindfulchampion/

Follow My Daughter Aria

Facebook: https://www.facebook.com/ariasarmy

GoFundMe: https://gofund.me/5e2f5fb4

Tune In to the Mindful Inspiration Podcast

YouTube: https://www.youtube.com/channel/UCmQ0RoJXlPh9flty9Zds5Kg

Spotify: https://open.spotify.com/show/0nUrUnETqKQKGXJvLbkTck

Apple Podcasts: https://podcasts.apple.com/tw/podcast/mindful-inspiration-champion/id1566268734?l=en

Stitcher: https://www.stitcher.com/show/mindful-inspiration-champion

Google Podcasts: https://podcasts.google.com/feed/aHR0cHM6Ly9mZWVkcy5yZWRjaXJjbGUuY29tLzk0MzhiMzFiLWFhZDgtNDIwMC1iMmFjLWFjZDAxMjE4YWJmYg?hl=en