This episode shares updates from Dr Serge Geara, neurologist and mito fellow at NeuRA. He explained why mito is hard to treat and what new research is happening.

Key points:

• New treatments like elamipretide, BIO101, KL133, REN001, NV354 and zagociguat are being studied.
• Research is early and still testing safety and effect.
• Biomarkers may help track mito in the future.

The full recording, slides and written summary of this session are on our website:

www.mito.org.au/resource/video/mito-community-summit-2025-whats-happening-in-clinical-trials-now/

To stay connected, subscribe to the Mito Foundation Podcast. For support, call the Helpline on 1300 977 180 or visit mito.org.au.

From advocacy and research to practical supports, this episode shares the key updates shaping the year ahead for the mito community.

In this episode, we walk through highlights from the January community newsletter, explain what’s happening behind the scenes at Mito Foundation, and share where to find trusted support and resources. It’s for people living with mito, families, and anyone who wants to stay informed about Mito Foundation priorities.

This episode shares key points from a panel led by Clare Stuart, with speakers Lani Quirk, Jessica Stevenson, Dr Sebastian Lush and Monique Alves. They explained how trials work and what they mean for people living with mito.

Main messages:

• Trials test if new treatments are safe and useful.
• Not everyone will be eligible, and trials take time and effort.
• People’s lived experience helps shape future treatments.

The full recording, slides and written summary of this session are on our website:

www.mito.org.au/resource/video/mito-community-summit-2025-clinical-trials-panel/

To stay connected, subscribe to the Mito Foundation Podcast. For support, call the Helpline on 1300 977 180 or visit mito.org.au.