Patient-Led Revolution: Susannah Fox on Rare Disease, Peer Networks & Rethinking Clinical Trials
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Patient-Led Revolution: Susannah Fox on Rare Disease, Peer Networks & Rethinking Clinical Trials
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About this listen
Join Denali and Brad for another episode of the Note to File podcast—where clinical research meets candid conversation, friendly banter, and the occasional deep-dive into paper towel dispensers. In this episode, we welcome the always-insightful Susannah Fox, self-described "internet geologist" and champion of patient-led innovation in healthcare.
Tune in as we swap stories of networking mishaps, pandemic-induced introversion, and the real deal behind patient involvement in clinical trials. Susannah shares her journey from rare disease events to the White House, plus practical lessons on listening to communities, engaging peer networks, and reimagining what "patient-centered" should truly mean.
Whether you're a curious researcher, a healthcare professional, or just love a good conversation, you'll find something to think about (and probably laugh about) in this episode. Subscribe for more interviews, commentary, and general nonsense for the clinical research community!