PeDRA Fellow Hannah Chang hosts a roundtable discussion with Dr. Jillian Rork and Dr. Deepti Gupta about a recent publication titled: Prevalence and Demographics of Psoriasis in the Down Syndrome Population: A Cross-Sectional Analysis Using the Epic Cosmos Dataset. This article was published in the Journal of the American Academy of Dermatology in September 2025.

Tell us about you by taking this 1-question survey!

In this episode of PeDRA Pearls, we’re joined by Meredith Weiss, Executive Director of the Gorlin Syndrome Alliance (GSA), to explore the intersection of patient advocacy, education, and research. Meredith shares her personal journey into rare disease advocacy and discusses how the GSA supports patients through community-building, clinician-led education, and a growing commitment to funding research–particularly in dermatology. Together, we highlight the critical role patient advocacy organizations play in improving quality of life and advancing meaningful, patient-centered research.

Gorlin Syndrome Alliance RFA

Tell us about yourself!

In this episode of PeDRA Pearls, PeDRA Fellow Hannah Chang speaks with Dr. Milie Fang, a pediatric dermatology fellow at Seattle Children’s Hospital, about her journey into pediatric dermatology. Dr. Fang reflects on how her personal experience with eczema sparked her interest in the field, her evolving research focus, and the mentorship and community she’s found through PeDRA. They also discuss navigating imposter syndrome, building a career in academic medicine, and her hopes for the future of pediatric dermatology.

Tell us about you!