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Sharing Our Stripes

Sharing Our Stripes

Written by: Laura
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About this listen

 Rare Patients. Real Stories. The Sharing Our Stripes podcast is a space for young adults living with rare disease to share their stories and bring attention to the unique challenges our community faces.Laura Hygiene & Healthy Living
Episodes
  • Disability Rewritten: Amplifying the Voices of Rare Patients with Dan Pezzetta

    Disability Rewritten: Amplifying the Voices of Rare Patients with Dan Pezzetta
    Jan 15 2023

    Sharing Our Stripes - Episode 1

    Disability Rewritten: Amplifying the Voices of Rare Patients with Dan Pezzetta


    Dan Pezzetta is a 23-year-old patient advocate living with Aortic Stenosis. Dan is currently attending George Washington University for Legislative Affairs, where he hopes to always make a tremendous impact in everything he does. Dan has had the pleasure to speak at M.I.T., Harvard, Rare Disease Week on Capitol Hill, and virtually during YARR's Summer Series.

    Dan recently started a passion project called Disability Rewritten where he talks about issues that disabled people have faced, historical moments or figures in the community, and highlighting people of today who have a story to share. You can find Dan on Instagram @disability.rewritten.


    Resources Mentioned:

    https://everylifefoundation.org/

    https://globalgenes.org/

    https://www.instagram.com/disability.rewritten/


    Connect With Laura:

    https://www.instagram.com/sharingmystripes/

    https://twitter.com/ShareMyStripes


    Are you a rare patient between the ages of 18-30? Are you interested in sharing your story? Email sharingmystripes@gmail.com for more information!
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    20 mins
  • Sharing Our Stripes (Trailer)

    Sharing Our Stripes (Trailer)
    Sep 28 2022
    1 min
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