This conversation explores the intersection of disability advocacy and medical education, highlighting the importance of collaboration between medical students and The Hive's disability advocacy community. Dr. Nora Newcomb discusses her journey in advocating for disability inclusion in healthcare, the development of educational resources, and the significance of feedback from advocates. The dialogue emphasizes the need for a patient-centered approach in medicine, the challenges faced in research, and the hope for a more inclusive future in healthcare. Special Thanks: members of the research team that are/were USF-affiliated: Abigail Weisse Shannon McCarthy Aishwarya Vuppala Franklin Sun Kyle Lien Rebekah Johnson Dr. Marjorie Fitzsimmons Dr. Andrew Galligan Dawn Schocken Dr. Jennifer Caputo-Seidler Shirley Smith Dr. Vinita Kiluk We would also like to thank NICHE Med for their funding and support And a huge shoutout to The Hive advocates: Chatequa Pinkston Tiffany Pervis Carrie Hoeh Natalia Rijos Tres Whitlock Chapters 00:00 Advocacy in Medicine: Becoming the Change 02:46 Collaboration for Disability Inclusion 05:47 Revitalizing Medical Education 08:45 Empowering Future Physicians 11:42 The Role of Personal Experience in Advocacy 14:15 Feedback and Iteration in Medical Training 17:12 Understanding Patient Needs 20:05 The Adept Care Protocol Explained 23:00 Shifting Perspectives in Patient Care 26:03 Paternalism vs. Patient-Centered Care 28:51 Research Gaps in Disability Studies 31:52 The Importance of Community in Medicine 34:34 Building Confidence in Medical Practice 37:31 Creating Lasting Change in Medical Education 40:25 Personal Journey of Advocacy 43:24 The Future of Disability Inclusion in Medicine 46:27 Final Thoughts and Hope for Change Transcript: Speaker 1 (00:00) I think there's a desire to want to wait to find an advocate in your institution to kind of glom onto to work with. If you're not finding that person, that means you are that person. Speaker 2 (00:13) love that. Hi, community and welcome to talking inclusivity with the hive. ⁓ If you don't know the hive is a nonprofit Tampa based nonprofit that is building ⁓ the first truly affordable and inclusive housing for adults with disabilities. A part of the mission of our community is amplifying the voices of advocates ⁓ that have disabilities as well as. organizations in our community that are being amazing allies and ⁓ moving the missions of the disability community forward. And so today I am meeting with Dr. Nora Newcomb. Hi, Nora. Thank you for joining us. And the reason we're so excited and we wanted to invite Dr. Newcomb on is because ⁓ in December of last year, USF Medicine, ⁓ reached out to us and asked the Hive to do a collaboration with ⁓ their medical students, the Hive advocates. And so we wanted to share about what that collaboration was about. ⁓ again, just ⁓ really be excited and share what USF Medicine is doing and ⁓ what they're doing for the disability community. So we're just gonna jump into our conversation. first, and I literally didn't... I going to do this, but I'm sure you assumed. Could you introduce us to you? Speaker 1 (01:46) Absolutely. So hi, everybody. I'm Nora Newcomb. I have my MD and I am currently a resident. So I am a doctor in training. ⁓ Other than that, to give a brief visual description, I am a white woman with long brown hair, wearing more makeup than I normally do, with black and white glasses, a red shirt and a flower necklace. I got involved in disability advocacy about five years ago. ⁓ and have been involved at the national level with Medical Students with Disability and Chronic Illness National, which is a student-driven organization. It's now a 501c3, dedicated to inclusion of disabled learners in medicine, but also the advancement and inclusion of ⁓ disabled people in medical spaces and improving education for high quality medical care for people with disabilities. Speaker 2 (02:45) So. Speaker 1 (02:46) So, yeah, I'll say, and we got to know each other through the work that we did while I was still at usf as a medical student, which just a little brief disclaimer. I'm speaking for myself. I don't speak for us. I don't speak for any other organizations. I just speak for me. ⁓ But we got to know each other for us. When I was working there as with a project through niche med. So, niche med is a grant that we were lucky enough to receive. through a DMD and it's a national initiative through the American Academy of developmental medicine and dentistry to support the development of disability inclusive curriculum specifically curriculum that is inclusive of ⁓ people and topics related to intellectual and developmental disability in medical school curriculum. And then there's also a dental version because it's known. that that is an area that is majorly lacking. So we met because we'd received funding through Niche to work on our curriculum and we reached out to you ...
Show More
Show Less
22 mins
52 mins
49 mins
37 mins