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The Collective Mind: A CurePSP Podcast

The Collective Mind: A CurePSP Podcast

Written by: CurePSP
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About this listen

 The Collective Mind features the latest from care partners, advocates, physicians, scientists, researchers and staff members on the fight against PSP, CBD and MSA, from the people bringing us closer to a cure.

We aim to educate and share the experiences of CurePSP community members, amplifying your voices and spreading awareness to make living with these diseases a little more manageable.

Host: Oscar SullivanCurePSP, Inc., unless attribution otherwise noted. CurePSP, Unlocking the Secrets of Brain Disease, and Because Hope Matters are registered trademarks of CurePSP, Inc Politics & Government Science
Episodes
  • S2 Ep6: Building a Home Through Care With Michelle

    S2 Ep6: Building a Home Through Care With Michelle
    Dec 10 2025
    When Michelle's 91-year-old father was diagnosed with PSP, she bought a house with an in-law suite to become his primary caregiver. She shares the nine months they spent together: the challenges of educating medical staff about PSP, the late-night conversations that revealed her father's hidden dreams and the advice that changed her life.

    After his passing, she opened the vintage store they'd dreamed about together and remains committed to raising awareness about PSP.

    Her message to other potential caregivers: "You're never, ever, ever going to regret doing it."
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    16 mins
  • S2 Ep5: Interdisciplinary Care With Dr. Danielle Shpiner

    S2 Ep5: Interdisciplinary Care With Dr. Danielle Shpiner
    Nov 12 2025
    Juggling appointments with a neurologist, physical therapist, speech pathologist and social worker — all in different places, none of them talking to each other — is exhausting. Dr. Danielle Shpiner is changing that. As Medical Director of the CurePSP Center of Care at the University of Miami, she's pioneered an interdisciplinary care model where patients meet with an entire team of specialists in one visit, who then collaborate on a single coordinated plan.

    She shares how they built this approach, why telemedicine has been a game-changer for patients who can't travel and what she's learning about whether this model actually improves outcomes. If you've ever felt like you're the only one connecting the dots in your care, this conversation will show you what’s possible.

    Explore our entire Centers of Care network here.
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    27 mins
  • S2 Ep4: Part Three: The Finish Line and Beyond

    S2 Ep4: Part Three: The Finish Line and Beyond
    Oct 15 2025
    What does it actually take to go from saying yes to crossing the finish line? In this final episode of our three-part series, follow Team CurePSP runners through the demanding journey of marathon training—from Matt Zarras's first mile when he couldn't run and wanted to quit, to Robin Loewald's 4:30 AM summer training runs, to the emotional weight of race week.

    Learn how running gave these runners control in uncontrollable circumstances, space to grieve and a way to stay connected to their loved ones. Experience the raw emotions of race day and how marathon running offered these family members something that PSP had taken away: the ability to do something, to make an impact and to keep moving forward.

    Learn more about Team CurePSP here.
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    15 mins
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