Send us a text

It feels so good to be back behind the mic! In this bonus episode, Alison is joined by co-host Tori for a laid-back but much-needed conversation about life with our trach/vent-dependent toddlers — and what the holidays look like when they happen inside the hospital instead of at home.

We know the weight of spending the holidays in the ICU: the grief, the guilt, the exhaustion, the “this isn’t how it’s supposed to be.” If that’s where you are right now, we want you to know there can still be joy — even in the most unexpected places.

We reflect on our own ICU holidays from 2022–2024:
• Tori’s incredible decorating skills
• Elias’s iconic 90s rapper Halloween costume
• Emotional (but joyful) first birthdays in the hospital
• Donny being in a medically induced coma over Christmas
• And the years we almost ignored the holidays completely

Through all of it, we’ve learned this: do the best with what you have, focus on the people who truly care, and remember that grief and joy can exist together. You don’t have to love the season, but you can find small moments of light — and you and your child deserve a good day, no matter where you are.

We also talk about how different life feels now that we’re no longer living in constant fight-or-flight. When this podcast started last year, neither of us imagined we’d someday feel this much happiness and contentment within medical complexity.

If you’re in the hospital or going through something heavy this holiday season, this episode is for you. 💛

Send us a text

This week, I’m joined by Erin. She’s an involved and empathetic NICU mom who just gets it. We talk candidly about what it was like to live in the ICU, the weight of advocating for your child, the emotional whiplash of NICU life, and how those challenges don’t magically end after discharge.

Erin shares what it’s been like raising her funny, sweet son, born at just 24 weeks, and what life looks like now as a preteen. We talk about the ongoing obstacles he’s overcome, including BPD and restrictive airway disease. We talk about how NICU trauma can linger long after the monitors stop beeping.

Erin explains how that trauma can resurface years later, and how therapy, community, and finding your people—especially fellow medical moms who truly understand, can make all the difference. Erin has beautifully turned her pain into purpose through her nonprofit photography business, Capturing Courage, offering free sessions to NICU families in Columbus, Ohio. She also serves on the executive committee of the BPD Collaborative, working to improve outcomes and support for families of medically complex children.

This is as real and lighthearted as it gets in the world of Trauma-Mama-ing. Erin and her son have overcome so much, and her story is a testament to resilience, healing, and finding meaning in the mess.

Whether you’re in the thick of it or years past discharge—you’ll feel like we get you.

We’re a mess, you’re a mess, you know we’re a mess, and we all know it. 😆😉 And it’s going to be okay. 👍🏻

Send us a text

This episode is an essential listen to learn more about bronchopulmonary dysplasia (BPD)—whether you’re a NICU parent, provider, therapist, nurse, respiratory therapist, or someone supporting a medically complex baby. I’m joined by Dr. Audrey Miller, neonatologist, educator, and chair of the advocacy committee at the BPD Collaborative, for a conversation that’s both informative and honest.

Dr. Audrey is a gifted and compassionate teacher, deeply committed to helping families and clinicians better understand this complex diagnosis. She explains how BPD exists on a spectrum—some babies may go home with low-flow oxygen and a nasal cannula, while others, like my son Donny, fall on the severe end, requiring a tracheostomy and ventilator. Our conversation focuses heavily on that severe side of BPD, because that’s the path we’ve lived—and I truly believe this information can change the trajectory for other families the way it did for ours.

Dr. Audrey said:

“If you’re the only family with a severe BPD patient at your hospital, you can feel very alone and maybe even feel like no one knows what BPD is. When in fact we do, and there’s a large group of people working to do the best things we can for your baby. So one of the ideas with starting the Parent Social Hour is that no matter where you are in the country, you can connect with other parents who have gone through this before—or are currently going through it.”

She reminds us that outcomes can be great in this population. The Collaborative is committed to improving care through research, education, and clinical guidance—not just in the NICU, but beyond, as these babies grow and go home.

We talk about the challenges that both parents and providers face—challenges the BPD Collaborative is actively working to address. These include the difficulty of developing standardized protocols, the mindset shifts still needed at many medical centers, and the reality that BPD is a disease of prematurity with many gray areas and no one-size-fits-all approach. While there’s still much to learn, there is also hope, meaningful progress, and real answers being offered.

I share what it was like to receive Donny’s severe diagnosis, and how frustrating it was to fight for BPD-specific care. Things finally started looking up when we found the continuity and guidance we had been searching for—help that changed everything for our son.

One of Dr. Audrey’s greatest passions is empowering parents to feel involved and confident in their child’s care. She believes strongly that parents aren’t just part of the care team—they’re essential to it.

If you need help advocating or need more answers for your child who’s received this diagnosis you can get in contact with the Collaborative here. (https://thebpdcollaborative.org/)