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Turtle Talk

Turtle Talk

Written by: Turtle Talk
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About this listen

 Grab your favorite drink and settle in with us weekly, as we discuss all the happenings in the PCD world. Our topics will include tips and tricks of living with PCD in your everyday lives, the latest on treatment options and how to fit them into your lifestyle, how to manage your stress and anxiety of having a chronic illness, how to become a better advocate for yourself or your loved one with PCD, and we will even touch on the controversial issues surrounding PCD and PCD Care.

“Primary ciliary dyskinesia (PCD) is a genetically heterogeneous, rare lung disease causing chronic oto- sino-pulmonary disease and irreversible lung damage that may progress to respiratory failure.” ~ Diagnosis, Monitoring, and Treatment of Primary Ciliary Dyskinesia: PCD Foundation Consensus Recommendations Based on State of the Art ReviewCopyright Turtle Talk Social Sciences
Episodes
  • June 6, 2022 Nutritional Tips for PCD

    June 6, 2022 Nutritional Tips for PCD
    Jun 6 2022
    Season 2, Episode 5; Nutritional Tips for PCD
    On today’s episode about life with primary ciliary dyskinesia; we will talk about the importance of eating in PCD, food & drink safety especially when traveling with PCD, making foods that are more appealing & easier to eat when breathless, strategies to help you cope with the activity of actually eating, and finally on this week’s editorial we will discuss how hiding medications in your PCD loved one’s food has lasting repercussions for your loved one’s lifetime.
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    54 mins
  • January 24, 2022 PCD Airway Clearance

    January 24, 2022 PCD Airway Clearance
    Jan 25 2022
    On today’s episode about life with primary ciliary dyskinesia; we will talk about the importance of airway clearance in PCD, the alarming trends to ditch airway clearance for PCD patients, mixing up airway clearance techniques to aid in better treatment compliance, we will explore another PCD myth, and finally on this week’s editorial we will discuss trend of dismissing adult patients experiencing with PCD based on the mere fact that these patients haven’t yet benefited from recent research.
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    55 mins
  • January 17, 2022 Chronic Illness in a Post 2020 World

    January 17, 2022 Chronic Illness in a Post 2020 World
    Jan 17 2022
    On today’s episode about life with primary ciliary dyskinesia; we will talk about the realities of time, exhausted providers, appearance of infection control policies verses the realities, we will explore another PCD myth, and finally on this week’s editorial we will discuss off label usages and the correctness of those practices.
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    1 hr and 1 min
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