Showing results for "ART" in People with Disabilities

Ben Mattlin lives a normal, independent life. Why is that interesting? Because Mattlin was born with spinal muscular atrophy, a congenital weakness from which he was expected to die in childhood. Not only did Mattlin live through childhood, he became one of the first students in a wheelchair to attend Harvard, from which he graduated and became a professional writer. His advantage?

Blindness in the 1950s was a social stigma. Stephen's mother wanted a normal life for him, so he fought desperately to uphold the illusion of sight. For a child frantic to fit in, each day was an exhausting pretence. He managed to ride a bike, when even reading involved pressing his nose to the page and painfully forcing his eyes to concentrate. Head up, he strode through a carefully memorized labyrinth of streets, hoping to fool passers-by that he could actually see.

When Ellie Goldstein was first diagnosed with Down Syndrome, her mother was soon told that her new-born would amount to nothing. For 21 years and counting, Ellie Goldstein has been defying the odds and overcoming every hardship thrown at her. Told she wouldn't walk, Ellie has danced on mainstages. Told she wouldn't learn, she has gained a college education. And told not to dream, Ellie has gone on to become the first model with Down Syndrome to be photographed for Gucci and continues to change the face of fashion from the inside out in countless international campaigns.

In 1895, a specialist straps five-year-old Katharine Hathaway, then suffering from spinal tuberculosis, to a board with halters and pulleys in a failed attempt to prevent her from becoming a “hunchback” like the “little locksmith” who does odd jobs at her family’s home. Forced to endure her confinement for ten years, Katharine remains immobile until age fifteen, only to find that none of it has prevented her from developing a deformity of her own.

"Ich bin einer derer, die die Jahreskarte gezogen haben. Wenn ich abrutsche oder hochfliege, dann für eine lange Zeit. Dann bin ich nicht mehr zu halten, ob im Flug oder im Fall." Die fesselnde Chronik einer manisch-depressiven Erkrankung: ein autobiografisch radikales Werk von höchster literarischer Kraft.

Award-winning author Mark Richard delivers a fascinating and unique memoir. Born in the South with deformed hips, Richard was tagged a “special” child. Nothing was expected of him. But as a young man, he decided to strike out and experience as much of our strange world as he possibly could.

Hearing Maud: A Journey for a Voice is a work of creative non-fiction that details the author’s experiences of deafness after losing most of her hearing at age four. It charts how, as she grew up, she was estranged from people and turned to reading and writing for solace, eventually establishing a career as a writer. Central to her narrative is the story of Maud Praed, the deaf daughter of 19th century Queensland expatriate novelist Rosa Praed.

February 29th is a date that comes into existence just once every four years. It is also the birthday of Thais - author Anne-Dauphine Julliand's darling daughter - who died of a genetic disease. Thais lived just shy of her fourth birthday. She had a short life but good one. As this special day is about to reappear on her calendar for the first time since her daughter passed away, Anne-Dauphine struggles with how to mark this momentous occasion. She wants to live fully on this special day: Thais would have been eight years old.

“Canal dói?” “O que é que eles fazem no Japão?” “Os Menudos são legais?” Stella Estrela não se dedica a responder nenhum desses questionamentos, mas a apresentar a autora dessa lista tão peculiar de perguntas. Stella nasceu com a síndrome de Williams-Beuren, uma desordem genética rara que impôs, de saída, enormes desafios a ela e a seus pais.