Showing results for "The Rare" in Relationships

Welcome to KCNA2 & Rare Epilepsy Podcast, a podcast created for the people living this journey and the people working to understand it. Each episode, hosted by Dr. Nancy Musarra, invites listeners into honest, generous, and sometimes vulnerable conversations with parents, researchers, clinicians, and board members to discuss the daily experiences of living with KCNA2, seizures, and other rare forms of epilepsy. You’ll hear stories, questions, and hopes from people who understand and are living with this disease. Our mission is to raise awareness, build connections and foster hope. This isn...

Dobro došli na podcast! Ovo je naše: “Zašto Rare & Share?”: Tokom lečenja sina od retke bolesti, a posebno nakon izlečenja imali smo prilike da upoznamo sjajne ljude i čujemo vrlo inspirativne priče. Ceo jedan svet sa svojim temama. Ovde ćemo pričati sa onima koji su pokretali lavine događaja, menjali okvire, pomerali granice do tada poznatog. Želimo da razgovaramo o temama koje su važne onima koji se suočavaju sa retkim izazovima kao što su pravni i zakonski okviri, aspekat psihološke podrške, medicinska dostignuća i nove studije. Planiramo razgovarati sa ekspertima, ...

Karsyn Elledge and Caitlin Waltrip are two lifelong besties, bonded by shared chaos, famous families, and a whole lot of laughs. In Rare Breeds, they’re diving headfirst into the hilarity and heartbreak of navigating life after growing up in NASCAR’s brightest glare. From spilling tea on messy nights out to tackling adulthood head-on, Karsyn and Caitlin bring their unfiltered takes and unmatched humor to every episode. This isn’t just another girlhood podcast—it’s a real, raw, and ridiculously funny ride through their one-of-a-kind perspective. Whether they’re dragging their past, ...

Imagine the excitement of becoming a new parent and then within hours finding out your child has a serious developmental disorder. That is exactly where Sanath Kumar Ramesh found himself in the summer of 2018. One year later, on his son’s first birthday, they found out that their son, Raghav, had an extremely rare mutation of the GPX4 gene. At the time, doctors told them that Raghav may be the only one on the planet with this genetic variant who had lived beyond one month of life. The prognosis is completely unknown. They were alone. They were scared. And then they went into action. And now ...

Hi, Welcome to the Strong and Rare parenting podcast. My name is Victoria, and I am a special needs momma of two fun loving boys. In this podcast, we will speak about all things Autism, ADHD, and Rare Diseases. This podcast will bring awareness, acceptance, and knowledge on all things we want to learn as parents raising children with special and medical needs. When you join me, I hope that you will walk away with hope and be empowered to be a driver of change for our community. Support this podcast: https://podcasters.spotify.com/pod/show/strongandrareparenting/support

The Non-Monogamy Playbook is the handbook for anyone curious about consensual non-monogamy: polyamory and open relationships. The Non-Monogamy Playbook shows us that there's joy in having multiple people in your life (platonic, sexy, romantic), but with each connection there is added vulnerability. This is the ultimate modern guide to non-monogamy, helping you create confident, healthy relationships.

The Voice of Women in Dubai & All Across The World. Sharing Your Lives & Journeys In Finding Your Power, Growing You Self-Worth, and Caring For Your Mental Health. Building The Rare Girls Sisterhood Network in Dubai & Worldwide, Where Empowered Women Make High Quality Friendships & Support Each Other's Success. Instagram: @raregirlspod Web: https://bio.link/raregirls

The Podcast where professionals listen to topics on faith, Money, business, and relationships that affect their world and everyday lives. Sam Mabry speaks with Professionals in various industries, from Medical to people services, about their rare journey from corporate careers to entrepreneurship. Conversations filled with humor, Jesus, and occasional revelations that will keep the listener wanting more until the next time. Stay for our Rare games...

Parenting tools and life hacks for raising a child with a rare diagnosis. Let’s get to the meat of it!

Adrien Gorrell n'est pas n'importe quel coach de vie. Avant d'être certifié, il était ingénieur en informatique diplômé d'une grande école, mais déprimait de ne rencontrer aucune femme, alors que chaque jour pourtant il les croisait grâce au métro-boulot-dodo. S'il voulait rencontrer la Perle Rare un jour, il comprit qu'il lui faudrait ouvrir son monde de possibles, se libérer de tous ces freins qui l'empêchent de juste parler à ces femmes qui l'attirent, là, n'importe où n'importe quand. Bien des années ont passé depuis cette prise de conscience. Les charlatans de la ...

Join us on a deeply moving journey as we delve into the remarkable story of a mother's unwavering love for her son, who battles not one, but two rare diseases. Through candid conversations and heartfelt moments, listeners will gain insight into the challenges, triumphs, and resilience of a family navigating the complexities of rare medical conditions. From the initial shock of diagnosis to the daily realities of caregiving, this podcast explores the profound bond between a mother and her child, demonstrating the power of love and determination in the face of adversity. Tune in to be inspired ...

Rare Mamas Rising is a podcast for mothers of children with rare diseases to find strategies, strength, support, and sisterhood! Hosted by Nikki McIntosh, founder of Rare Mamas, author of the book Rare Mamas: Empowering Strategies for Navigating Your Child's Rare Disease, and a rare mom herself, each episode offers heartfelt reflections, practical tools, and empowering strategies to help you rise to the call of rare disease parenting. Catch an episode of Rare Mamas Rising and walk away encouraged, uplifted, and empowered. We rise stronger when we rise together—let's rise!

A podcast for parents and families of people living with rare diseases in Ontario. I Care for Rare is a social advocacy campaign, designed to give individuals, families and caregivers living with rare diseases a collective voice for system healthcare AND community support reform.

Familyyyy qui troverete tutte le dirette trasmesse su Radio G di Più Unici Che Rari. Una rubrica creata per sensibilizzare, entrare nel cuore e nelle riflessioni del mondo attraverso musica, amore e talento!

Join me every week as I navigate the ups and downs, and everything in between of the crazy stressful, but always beautiful life of being a rare disease parent.

The personally harrowing and medically enthralling story of a family's struggle to save a child from a deadly immune deficiency. A journey through the deepest valleys and highest peaks of parenting. When a two-month-old baby falls ill, his apparently ordinary symptoms turn out to signal a rare...

Take a leap back around 500 years to a medieval castle to listen to the wisdom found in FAST FREDDIE’S CASTLE OF COMMON SENSE. Who is FAST FREDDIE? He is a 75-year-old grandfather who has survived, thrived and then retired from over 50 years in the hot cauldron of customer service and business interaction. He is a man who has an opinion on everything. He likes controlled sarcasm. He dislikes zealots of all stripes. He believes in moderation in all things. He has no time for non-sensical causes. His mission? THE RESTORATION OF COMMON SENSE.

Are you raising a child with a Rare Disease, Special Need, or an Invisible Disease? Are you frustrated because you don’t have help and people just don’t understand your life? Do you feel like doctor’s appointments, daily medicine, and hospital bills are consuming your life? Do you want to have hope and live in freedom and not fear of what’s to come? In the Resilient Moms podcast, you will find a community for moms who will guide you in this beautiful journey of raising your warrior. You will feel encouraged, supported, and you will not feel alone in this journey. I will provide ...

As a mom of a son with Skraban-Deardorff Syndrome, a WDR26-related intellectual disability, I started listening to podcasts as a form of therapy and to get advice for how to navigate through the emotions and questions that come with having a child with a rare disease diagnosis. I started this podcast for those impacted by Skraban-Deardorff, and other rare diseases, as a way to share stories, ask and answer questions, get advice and have a platform where we can work to understand together what the diagnosis means and how we can support each other. The podcast will feature guests and experts ...

Written by sex educator and body-positivity advocate Ruby Rare, Sex Ed is the practical and fun guide to sex that you've always wanted - but never known how to ask for. This is the information you should have been taught at school: a no-holds-barred roadmap that covers everything from how the brain is the most important sex organ and how to communicate what you want to yourself and a partner, all the way down to the messy stuff - solo sex, orgasms, touching, kissing, blow jobs, cunnilingus, anal play, lube, toys, kegels.