Episodes

  • Help 4 HD Happenings in 2026

    Help 4 HD Happenings in 2026
    Jan 8 2026
    Katrina Hamel joins Lauren to talk about what Help 4 HD has planned for 2026. Take a listen!

    You can also register to attend the events mentioned at the website: www.help4hd.org
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    27 mins
  • November Update with Katie Jackson

    November Update with Katie Jackson
    Nov 6 2025
    Please reach out to Lauren or Katie if you want contact information for the FDA.
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    42 mins
  • JHD Uncut, Halloween Edition

    JHD Uncut, Halloween Edition
    Oct 30 2025
    Happy Halloween! Melissa and Lauren talk about JHD and how we can adapt for our loved ones for holidays like Halloween.
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    17 mins
  • A Glimmer of Light in the Shadows with Jennifer Goddard

    A Glimmer of Light in the Shadows with Jennifer Goddard
    Oct 9 2025
    If you would like to purchase Jen's book, you can do so here.
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    45 mins
  • HD Uncut wiith Erin Paterson

    HD Uncut wiith Erin Paterson
    Oct 2 2025
    Author Erin Paterson joined Lauren Holder to talk about their mixed feelings regarding UniQure's recent update.
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    29 mins
  • UniQure Update with Dr. Ed Wild

    UniQure Update with Dr. Ed Wild
    Sep 25 2025
    Dr. Ed Wild joins Lauren Holder to talk about the recent update from UniQure.
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    38 mins
  • Sunday Sit-down with Terina Martinez

    Sunday Sit-down with Terina Martinez
    Sep 14 2025
    If you'd like to learn more about C-Path, please visit their website here.
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    51 mins
  • Important Update with HD-PACE

    Important Update with HD-PACE
    Aug 28 2025
    We want to hear about your experience at HD clinics, including what worked, what didn’t, and what could be improved. We have created a short, anonymous 15-minute survey for patients and caregivers to share feedback. |

    Your feedback can help improve HD care—for you, your family, and the thousands of others navigating this disease.

    📊 Once we have enough responses, results will be shared publicly at www.hdpace.org.

    Your voice matters! Please take the survey and share it with others in the HD community.
    #HuntingtonsDisease #HDCommunity #PatientVoice #HDPACE

    🔗 Take the survey here.
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    16 mins