Keywords

health advocacy, patient empowerment, healthcare system, self-advocacy, doctor visits, healthcare resources, United States of Healthcare, patient stories, healthcare challenges, AI in healthcare

Summary

In this conversation, Joyce Griggs shares her journey into health advocacy, highlighting the challenges faced by patients in navigating the healthcare system. She discusses the importance of self-advocacy, preparing for doctor visits, and managing the dynamics between patients and healthcare providers. Joyce emphasizes the need for personalized care and the role of technology, including AI, in shaping the future of healthcare. The discussion also touches on the systemic issues within the healthcare system and the importance of community support and resources for patients.

Takeaways

Advocacy is crucial for navigating the healthcare system.

Patients often face significant challenges in getting proper care.

Self-advocacy is an essential skill for all patients.

Preparing for doctor visits can improve outcomes.

Emotional management is key before healthcare appointments.

Bias exists in healthcare, affecting patient treatment.

Community support can empower patients in their advocacy efforts.

AI has potential benefits and risks in healthcare decision-making.

Personalized care is necessary for effective treatment.

Understanding insurance processes can help patients advocate for themselves.

Titles

Navigating the Healthcare Maze: A Journey of Advocacy

Empowering Patients: The Role of Self-Advocacy

Sound bites

"We need to be our own advocates."

"We are the experts of ourselves."

"Personalized care is essential."

Chapters

00:00 Introduction to Health Advocacy

02:54 Personal Journey into Healthcare Advocacy

05:53 Navigating the Healthcare System

08:25 Building the United States of Healthcare

11:34 Resources for Health Advocacy

14:23 Preparing for Doctor Visits

17:07 Managing Emotions in Healthcare

19:48 Interviewing Healthcare Providers

22:49 Addressing Systemic Issues in Healthcare

28:02 Navigating Healthcare Access Challenges

30:38 Addressing Power Imbalances in Healthcare

34:26 The Impact of Bias in Medical Treatment

35:22 Evolving Perspectives in Medicine

37:23 Utilizing Technology for Patient Advocacy

42:04 Building Community and Support

46:51 Envisioning a Better Healthcare System

50:20 end cap.mp4

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Summary

In this conversation, Tara Moriarty discusses her journey into the world of service dogs, the challenges of finding and training them, and the importance of understanding their role in supporting individuals with disabilities. The discussion covers the costs associated with obtaining a service dog, the various training methods, and the misconceptions that the public holds about service dogs and their handlers. This conversation delves into the distinctions between service dogs and emotional support animals, emphasizing the legal definitions and roles of each. It explores the challenges faced by service dog owners, including the need for proper training and support systems. The discussion highlights the importance of planning for the future care of service dogs, especially for individuals with degenerative conditions. Additionally, it covers the process of finding the right dog and trainer, advocating for positive reinforcement training methods, and the significance of using food as a motivational tool in dog training.

Chapters

00:00 Introduction to Service Dogs and Their Importance

03:13 The Cost and Accessibility of Service Dogs

06:07 The Journey into Dog Training

08:52 Understanding Dog Behavior and Training Methods

12:06 The Need for Service Dogs: When is it Time?

14:59 Choosing the Right Breed for Service Dogs

17:45 Public Misconceptions About Service Dogs

25:50 Understanding Service Dogs vs. Emotional Support Animals

29:08 Navigating the Challenges of Service Dog Ownership

31:55 Preparing for a Service Dog: Key Considerations

34:22 Finding the Right Dog and Trainer

38:53 The Importance of Positive Reinforcement in Training

44:57 Innovative Training Techniques and Resources

Takeaways

Service dogs can be very expensive, ranging from $20,000 to $40,000.

Nonprofits may offer lower-cost options, but availability is limited.

Training a service dog can be a complex and costly process.

Understanding dog behavior is crucial for effective training.

Positive reinforcement is a more effective training method than punishment.

Many people consider getting a service dog too late in their journey.

The right breed for a service dog is less important than temperament.

Labradors, Goldens, and Poodles are commonly recommended breeds.

Public misconceptions about service dogs can lead to challenges for handlers.

Emotional support is not a task that qualifies a dog as a service dog. Service dogs are task-trained to mitigate specific disabilities.

Emotional support animals provide comfort but lack legal recognition as service animals.

It's crucial to have a plan for the care of a service dog as health conditions change.

Choosing the right breed is essential for first-time service dog owners.

Positive reinforcement is key to effective dog training.

Finding a qualified dog trainer can significantly impact training success.

Service dog tasks are tailored to individual needs and circumstances.

Proper training and socialization are vital for service dogs to function in public.

Planning ahead for a service dog's future is necessary for responsible ownership.

Using food as a reward can enhance training and strengthen the bond with your dog.

Keywords

service dogs, dog training, psychiatric service dogs, emotional support, dog behavior, training methods, cost of service dogs, choosing a service dog, public misconceptions, service dogs, emotional support animals, training, positive reinforcement, disability, dog ownership, service dog tasks, finding a trainer, dog breeds, service dog laws

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Chronic illness is a marathon and not a sprint! Monica (Explicitly Sick) and Jason (Discomfort Zone) talk about how they cope with chronic illness and other life bullshit:

• Finding the people that won't tell you you're crazy
• Pets that both comfort and injure Monica
• Meditating when you can't sit still
• Denial! YES, denial is a perfectly legitimate coping response, and never let anyone tell you otherwise :)

Do you have coping strategies that you'd like to share? Let us know what works for you in our Facebook Group!

**ALSO, BIG ANNOUNCEMENT: Monica and Jason are both seeking your stories on gaslighting. These stories could be a part of a long-form audio story or in Monica's Magazine. Send us an email at contact@invisiblenotbroken.com with a written or oral summary of your story. In the subject line, please write "gaslighting stories" as well as your country of residence.

_____

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HUMANCARE WITH EVA

DISCOMFORT ZONE WITH JASON

SEX AND CHRONIC ILLNESS WITH DR. LEE

CHECK OUT OUR OFFICIAL INVISIBLE NOT BROKEN FACEBOOK PAGE AND OUR INSTAGRAMS!

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Keywords

Aggressive Systemic Mastocytosis, chronic illness, advocacy, mental health, writing, self-care, body image, healthcare activism, rare diseases, education

Summary

In this conversation, Rachel Largent Phillips shares her journey with aggressive systemic mastocytosis, a rare disorder that significantly impacts her daily life. She discusses the challenges of living with a chronic illness, including navigating the healthcare system, advocating for herself and others, and the emotional toll of writing her book, 'Life Beyond the Flare.' Rachel emphasizes the importance of self-care, mental health, and authenticity in the face of societal pressures and the complexities of living with a rare disease. She also highlights the political nature of healthcare and the need for continued advocacy for those with chronic illnesses.

Takeaways

Rachel was born with aggressive systemic mastocytosis, diagnosed in her 30s.

It took 12 years for her to receive a proper diagnosis.

Daily life is unpredictable, requiring constant vigilance and preparedness.

Advocacy is crucial; Rachel has lobbied for healthcare reforms.

Writing her book was a way to educate others about her rare disease.

Self-care and giving oneself grace are essential for managing chronic illness.

Rest can take many forms, including mental and emotional breaks.

Navigating relationships while managing a chronic illness can be challenging.

Societal beauty standards can add pressure to those with chronic illnesses.

Mental health is as important as physical health in chronic illness management.

Sound bites

"I was born with it."

"I have lots of EpiPens."

"It's okay to have bad days."

Chapters

00:00 Understanding Aggressive Systemic Mastocytosis

03:31 Navigating Daily Life with a Rare Disorder

07:47 Advocacy and Activism in Healthcare

10:51 The Emotional Journey of Writing a Book

13:48 Finding Grace in Chronic Illness

16:01 Rest and Self-Care Strategies

18:27 Managing Allergies and Anaphylaxis

21:33 Dating and Relationships with Chronic Illness

24:45 Societal Pressures and Body Image

29:11 The Importance of Mental Health

34:07 The Power of Authenticity

37:34 Navigating the Medical System

43:45 The Reality of Living with a Rare Disease

49:56 Pursuing Education Amidst Health Challenges

54:06 The Political Nature of Healthcare

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Summary

In this conversation, Tisha shares her journey of living with chronic illness, emphasizing the importance of gratitude, community support, and the struggles of public perception. She discusses her experiences with autoimmune disorders, the challenges of diagnosis, and how she has reframed her relationship with her illness, focusing on empowerment rather than battle. In this conversation, the speaker shares their experiences of parenting with a disability, discussing the challenges of communicating their condition to their children and the emotional toll it takes on family dynamics. They explore the journey of finding purpose while being bedbound and the therapeutic process of writing a book about their experiences. The discussion emphasizes the importance of support systems, the need for understanding in educational settings, and the resilience required to navigate life with a disability.

Takeaways

Gratitude can be a powerful tool for coping with chronic illness.

Public perception often overlooks the struggles of those with invisible illnesses.

Community support plays a crucial role in mental health and resilience.

The journey to diagnosis can be long and fraught with challenges.

Reframing the narrative around illness can lead to empowerment.

It's important to check in on loved ones, even those who seem happy.

Sharing personal stories can help others feel less alone.

Wearing heels can be a form of self-expression and empowerment.

Language matters when discussing illness and identity.

Writing can be a therapeutic way to share one's journey. Talking to children about disabilities requires different approaches based on their age.

The emotional impact of a parent's illness can lead to complex family dynamics.

Creating a game out of challenges can help children cope with difficult situations.

Parents often feel guilt for not being able to participate in typical activities with their children.

Support from family and friends is crucial when dealing with chronic illness.

Living with a disability can lead to feelings of isolation and despair.

Finding purpose and joy in life, even from bed, is possible.

Writing about personal experiences can be a healing process.

It's important to advocate for accessibility in schools and public spaces.

Resilience and community support are key to thriving despite adversity.

Keywords

gratitude, chronic illness, public perception, diagnosis journey, living with illness, mental health, autoimmune disorders, personal stories, resilience, community support, disability, parenting, mental health, communication, writing, resilience, family dynamics, bedbound life, emotional support, personal journey

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