Lesser-Known ECT Side Effects: Ion Channel Dysfunction,

Neurodegenerative Conditions & Cardiac Complications

In this episode, I’ll be discussing some serious, lesser-known electroconvulsive Therapy (ECT) side effects including ion channel dysfunction (aquired channelopathies), potential links to neurodegenerative conditions like ALS, and cardiac complications many of us face as we age.

We’ll also explore the challenges these conditions create for those living with them—the lack of research and what we can do about it.

Show Notes

https://drive.google.com/file/d/196hQfpJWox28zcv8psI0iCH3Y1uq3yia/view?usp=sharing

Music Credits

Intro/Outro: "Naya Instrumental" by Tomh Artist: @tomh_music Track: https://soundcloud.com/tomh_music/naya-instrumental Used under free license with attribution.

In this episode, Sarah Price Hancock presents "Electrical Injury: Rehabilitation Needs Through the Lens of Electroconvulsive Therapy (ECT) Recipients," originally recorded on November 15, 2024.

The presentation examines rehabilitation considerations for individuals who have undergone ECT, drawing on both research and lived experience.

About the Presenters

Sarah Price Hancock is an alumna of the Rehabilitation Counseling program at San Diego State University with over 14 years of experience in the field. She brings both personal and professional perspectives to the topic of ECT and electrical injury rehabilitation. She is also the founder and director of the nonprofit Ion Inc. and leads the Audit ECT campaign. Links to her work are included below.

Joining Sarah is Chuck Degeneffe, Professor of Rehabilitation Counseling and Chair of the Department of Administration, Rehabilitation, and Postsecondary Education at San Diego State University.

Sarah's Info

https://lifeafterect.org/about-us-2/#:~:text=Sarah,Publications

The Audit ECT Campaign

https://lifeafterect.org/ect-advocacy/audit-ect/

In this episode, we close out this series by exploring how harm from electroconvulsive therapy (ECT) has been discussed—and often dismissed—over time.

We trace patient experiences from the 1950s through the patient-rights movement, and talk about how informedconsent came to shape what happens after patients report problems.

We explore what it looks like when ECT recipients do get testing, how patients are described in early research and modern textbooks, and end with unanswered emails from ECT survivors asking for evaluation—and what that silence tells us.

Content Warnings

• Forced ECT

• Abuse

• Medical gaslighting

Feel free to skip this episode if these topics are distressing to you.

Fair Use Disclaimer

This episode includes brief excerpts from copyrighted books, publications, podcasts, and public records for purposes of commentary, criticism, education, and public interest journalism under fair use (Section107, U.S. Copyright Act).

This episode discusses medical practices, patient experiences, and systemic issues in healthcare for educational purposes. All cited materials remain the property of their respective copyright holders.This use is transformative and does not substitute for the original works. We encourage listeners to support the original creators.

SHOW NOTES & RESOURCES

https://drive.google.com/file/d/10k5c4FGMbwAS-oCdIe9x0bmxYF4MmFYC/view?usp=sharing

Life After ECT Inc. is a 501(c)(3) charitable organization dedicated to improving the lives of those harmed by ECT through advocacy, education, and research.Learn how you can support our work.

🎵 Music Credits:

Intro/Outro:"Naya Instrumental" by Tomh

Artist:@tomh_music

Track:https://soundcloud.com/tomh_music/naya-instrumental

Used under free license with attribution

#Breakingcodesilence #ISeeYouSurvivor

Why are people harmed by ECT so often ignored — even when they reach out directly to researchers?

Content Warnings: Brief mention if abuse and suicide.

In this episode, we continue reading emails from injured ECT patients who reached out to government-funded researcher Harold Sackeim, only to have their pleas for help ignored.

Sackeim had publicly invited people experiencing memory problems after ECT to contact him—but, according to author Linda Andre, he later testified that he discarded 175 of those messages.

Through these stories, we dig deeper into the history of why people harmed by ECT are so often not beleived.

this is for educational purposes only. I’m not a medical professional, and nothing here should be taken as medical advice. I’m sharing my understanding of the public record and other published works on this topic.

Show Notes:

https://docs.google.com/document/d/1C_PesMA4_CFCPkLXojJWSjP8ipq9SGTGo2r5KBeo5Oo/edit?usp=sharing

🎵 Music Credits:

Intro/Outro: "Naya Instrumental" by Tomh

Artist: @tomh_music

Track: https://soundcloud.com/tomh_music/naya-instrumental

Used under free license with attribution

In this episode, we continue reading emails from injured ECT patients who reached out to government-funded researcher Harold Sackeim, only to have their pleas for help ignored.

Sackeim had publicly invited people experiencing memory problems after ECT to contact him—but, according to author Linda Andre, he later testified that he discarded 175 of those messages.

Through these stories, we dig deeper into the history of why people harmed by ECT are so often dismissed and disbelieved.

Show Notes

https://docs.google.com/document/d/1C_PesMA4_CFCPkLXojJWSjP8ipq9SGTGo2r5KBeo5Oo/edit?usp=sharing

Life After ECT Inc. is a 501(c)(3) charitable organization dedicated to improving the lives of those harmed by ECT through advocacy, education, and research. Learn how you can support our work.

In this episode, we revisit a 2010 FDA letter by Linda Andre, and emails from ECT survivors who reached out to goverment funded researcher, Harold Sackeim, for help.

Sackeim had publicly invited people experiencing memory problems after ECT to contact him—but according to Linda Andre, he later testified that he discarded messages from 175 patients who wrote to him asking for help.

Show Notes

https://docs.google.com/document/d/1https://docs.google.com/document/d/1csy4Ah-34c0TIkilOpNBFfXHiQ72fLYgRLHTMk0NBSQ/edit?usp=sharing

Life After ECT Inc. is a 501(c)(3) charitable organization dedicated to improving the lives of those harmed by ECT through advocacy, education, and research.

Learn how you can support our work.

This video is for anyone who feels like they lost a part of themselves after ECT. I want to give voice to the unseen challenges so many face after electroconvulsive therapy. Many who’ve had ECT are living with undiagnosed, untreated disabilities—struggling to find acknowledgment and support. The aftermath of ECT can be life-changing, impacting everything—identity, career, and relationships. I created this video essay to process my own experience of becoming disabled after ECT.

My hope is that it will help you know that your experience is real and you are not alone.

This video was originally uploaded to YouTube in 2016. ResourcesGrief After ECT: ⁠https://lifeafterect.com/disenfranchised-grief-the-unseen-pain-of-those-disabled-by-electroconvulsive-therapy-ect/⁠

Resources: ⁠https://lifeafterect.com/resources/ ⁠ECT Stories: ⁠https://lifeafterect.com/ect-stories/⁠

Learn how you can help all who undergo ECT live their best life by supporting reforms that will ensure informed consent, rehab if recipients need it, and more https://www.change.org/p/standardize-regulate-audit-shock-treatments-electroconvulsive-therapy-or-ect⁠ ------------ Life After ECT Inc. is a 501(c)(3) nonprofit organization dedicated to improving the lives of people harmed by ECT through advocacy, education, and research.

⁠https://lifeafterect.com/donate⁠

This video is for anyone who feels like they lost a part of themselves after ECT.

I want to give voice to the unseen challenges so many face after electroconvulsive therapy. Many who’ve had ECT are living with undiagnosed, untreated disabilities—struggling to find acknowledgment and support. The aftermath of ECT can be life-changing, impacting everything—identity, career, and relationships. I created this video essay to process my own experience of becoming disabled after ECT.

My hope is that it will help you know that your experience is real and you are not alone.

This video was originally uploaded to YouTube in 2016. Resources

Grief After ECT: https://lifeafterect.com/disenfranchised-grief-the-unseen-pain-of-those-disabled-by-electroconvulsive-therapy-ect/Resources: https://lifeafterect.com/resources/ ECT Stories: https://lifeafterect.com/ect-stories/

Get Involved

Learn how you can help support people harmed by ECT

https://www.change.org/p/standardize-regulate-audit-shock-treatments-electroconvulsive-therapy-or-ect ------------ Life After ECT Inc. is a 501(c)(3) nonprofit organization dedicated to improving the lives of people harmed by ECT through advocacy, education, and research.

https://lifeafterect.com/donate