In season two, episode one of Unifying Research, I had the pleasure of sitting down with a true research innovator and a rare disease patient with a fascinating story.

Our research expert this episode is Kaye Doiron, an innovator and serial entrepreneur, who is helping to redefine how we think about clinical trials. Whether it's her Patient Negative One concept, or her new AI-driven tool for research sites, Kaye understands how to take novel ideas and make them reality.

Our patient guest this episode is Christine Von Raesfeld. Christine is a rare disease patient who has used her lived experience, along with other advocates, as the foundation for the Patient AI Rights Initiative, which offers a clear framework to help individuals understand what the rise of AI means for autonomy, ethics, and trust.

Additional resources:

• Connect with Kaye Doiron on LinkedIn
• Connect with Christine Von Raesfeld on LinkedIn
• Learn more about Patient Negative One
• Learn more about Research Works Inc.
• Learn more about the Light Collective
• Check out the AI Rights for Patients Initiative
• Connect with Univo to learn more about our mission and services
  
  
• Learn more about Univo's partners working together to bring the patient's voice to research:
• Clinical Trials For All
• Savvy Cooperative
• Inspire
• Children's Flight of Hope
• The Patient View
• AAHRPP

In the seventh episode of Unifying Research, I sit down with a clinical research leader to discuss the psychology of decision making in our industry. Then, I had the privilege of speaking with a unique research participant – someone who has participated in over 15 studies and has over 15 years’ experience working in the research industry.

My research expert guest is Mitch Hible, the Founder and CEO of Diversitrials and Chief Strategy Officer at Clinical Research Pro. Mitch has two decades of experience in our industry and is a true entrepreneur at heart. As we discuss decision making in our industry, Mitch shares some great practical advice for all of us.

The patient-side guest for this episode is Jess Thompson. Jess has been participating in research studies since college, and her experiences in each study have helped shape her career path in the research industry.

Additional resources:

• Connect with Mitch Hilbe on LinkedIn
• Connect with Jess Thompson on LinkedIn
• Learn more about Diversitrials
• Learn more about Clinical Research Pro
• Learn more about the Clinical Research Justice League non-profit
• Connect with Univo to learn more about our mission and services
  
  
• Learn more about Univo's partners working together to bring the patient's voice to research:
• Clinical Trials For All
• Savvy Cooperative
• Inspire
• Children's Flight of Hope
• AAHRPP

In this patient-centered episode of Unifying Research, I sat down with Bryan Soronson, a research administrator and expert for over four decades. After being diagnosed with Multiple Myeloma, Bryan eventually found his way into a clinical trial.

Bryan shares his career, diagnosis journey and experience being in a trial, all with the grace and wisdom of someone who has spent their entire career improving the industry he ended up relying on.

From talking about taking accountability for your own health, to the importance of patient advocacy, this is an encouraging and enlightening conversation that I know you will enjoy.

Additional resources:

• Bryan is involved with all of these organizations through patient advocacy and coaching:
  • Visit Healthtree.org for more information about how to help those with blood cancer
  • Learn more about the International Myeloma Foundation, the first and largest global foundation focusing on multiple myeloma.
  • Check out the Multiple Myeloma Research Foundation, the largest nonprofit focused on finding a cure for multiple myeloma.
  • Blood Cancer United, formerly The Leukemia & Lymphoma Society
• Learn more about Univo's partners working together to bring the patient's voice to research:
  • Clinical Trials For All
  • Savvy Cooperative
  • Inspire
  • Children's Flight of Hope
  • AAHRPP