Showing results for "Health" in People with Disabilities

In 1997, Daniel Trush, a bright, active, outgoing twelve-year-old, collapsed on the basketball court and fell into a deep coma. Rushed to the hospital, he was found to have five previously undetected aneurysms in his brain. One had burst, causing a massive cerebral hemorrhage. While Daniel remained comatose, the uncontrolled pressure inside his skull caused him to suffer multiple strokes.

Living in the Belgian Congo with her husband in the 1960s, Fran’s mother became pregnant with a daughter. However, right after she gave birth in the hospital, she felt strange. Unbeknownst to anyone, another daughter was on the way, but before anybody responded, an hour had passed. Because of the delay, Fran was born with cerebral palsy. Growing up with her siblings in Africa, Fran always felt different. When everyone else was playing and having fun, she would watch and wish she could join in.

“Hanley’s dyslexia makes this audio format especially significant, as it represents an accessible way for readers with learning disabilities, just like him, to comprehend and enjoy his story.”—Booklist This program is read by the author, comedian and severe dyslexic Phil Hanley, who...

Barbara Anderson narrates with brutal honesty the day-to-day experience of having a child with disabilities: the challenges inside and outside the home, health and life complications, the shifting priorities, the daily Mt. Everest-sized struggle of having a child with an—until now—irreversible diagnosis such as infantile cerebral palsy.

This intimate memoir reveals the woman inside one of autism’s most prominent figures, Jennifer O'Toole. At the age of 35, Jennifer was diagnosed with Asperger's syndrome, and for the first time in her life, things made sense. Now, she exposes the constant struggle between carefully crafted persona and authentic existence, editing the autism script with wit, candor, passion, and power. Her journey is one of reverse-self-discovery not only as an Aspie but - more importantly - as a thoroughly modern woman.

Almost 10 years after learning that her son is autistic, Julie Green was also diagnosed, shedding light on a lifetime of feeling othered and misunderstood. Motherness traces Julie's journey from childhood to early motherhood, when she must advocate for her son while navigating her own struggles. With more girls and women being diagnosed in the last decade—many of them later in life—the face of autism is changing. Motherness provides a rich, intensely personal account of what it is like to be autistic through the lens of both a mother and child.

Lauren Windas is one of the estimated 250,000 people suffering with CFS in the UK. Whilst at university in 2012, she fell ill with a viral infection and was later diagnosed with CFS. Since then she has devoted herself to reclaiming her health and being able to live a full life, drawing on the knowledge of experts to help manage her often mysterious and hard-to-manage condition. In Chronic Fatigue Syndrome, Lauren recounts the highs and lows of her own health journey and experiences,.

Despite the incredible strain of all these challenges, Mindy manages them with amazing tenderness, persistence, and love. Far from a depressing story of misfortune, Last Nerve is as uplifting and witty as it is raw and real. It’s a testament to hope, the endurance of family, and the resilience of the human spirit.

Reject the stigmas of trauma and chronic illness by fostering queer forms of intimacy—and embracing the many ways humans can care for one another. The writer behind the popular @softcore_trauma Instagram offers a deeply personal memoir for folks seeking healing and better care. The forms of...

*Order now to read the long-awaited debut book from the huge TikTok sensation Evie Meg | This Trippy Hippie!* Hey guys, you might know me already from one of my social media channels where I talk about the highs and lows of living with Tourette's Syndrome. I've loved sharing those times with you...

From NFL player Steve Gleason, a powerful, inspiring memoir of love, heartbreak, resilience, family, and remarkable triumph in the face of ALS "Gleason is a symbol of resilience, hope and optimism.” —The New York Times "Steve Gleason has changed the world." –Roger Goodell, NFL...

Henry Markram is the Elon Musk of neuroscience, the man behind the billion-dollar Blue Brain Project to build a supercomputer model of the brain. He has set the goal of decoding all disturbances of the mind within a generation. This quest is personal for him. The driving force behind his grand ambition has been his son Kai, who has autism. Raising Kai made Henry Markram question all that he thought he knew about neuroscience, and then inspired his groundbreaking research that would upend the conventional wisdom about autism, expressed in his now-famous theory of Intense World Syndrome.

Brought to you by Penguin. A groundbreaking memoir about what it means to be a disabled woman in Britain today from the acclaimed journalist and author, including insights and personal stories from over 50 contributors 'No one really talks about it. No one really talks about what it is to be a...

A Short History of Falling – like The Diving Bell and the Butterfly, and When Breath Becomes Air – is a searingly beautiful, profound and unforgettable memoir that finds light and even humour in the darkest of places. We keep an old shoebox, Gill and I, nestled in a drawer in our room...

Oliver Mol was a successful, clever, healthy twenty-five-year old. Then one day the migraine started. For ten months, the pain was constant, exacerbated by writing, reading, using computers, looking at phones or anything with a screen. Slowly he became a writer who no longer wrote, and a person who could no longer could communicate with the modern world. In literature, and life, Oliver began to disappear. His doctors can't figure out how to fix him. He suffers a breakdown. One evening, high on pain killers, Oliver Googles the only thing he can think of.

Schon als Teenager wusste Fern Brady, dass sie anders war. Als sie zufällig über Autismus las, wusste sie instinktiv, warum. Hier war die Erklärung für ihre Wahrnehmungsstörungen, ihre Meltdowns, ihre Unfähigkeit, soziale Signale zu deuten. Doch erst mit 34 folgte endlich die befreiende Diagnose. In dieser schonungslos ehrlichen Autobiografie erzählt sie ohne Rücksicht und mit dem ihr eigenen Witz von Neurodiversität zwischen Sexismus und Ableismus und ihrem offenen Umgang damit.

Mothering under normal circumstances takes all you have to give. But what happens when your child is disabled, and sacrificing all you've got and more is the only hope for a decent future? Full of rage and resilience, duty and love, Ashley Bristowe delivers a mother's voice like no other we've...

The story of Jamie Bérubé’s journey to adulthood and a meditation on disability in American life Published in 1996, Life as We Know It introduced Jamie Bérubé to the world as a sweet, bright, gregarious little boy who loves the Beatles, pizza, and making lists. When he is asked in his...

February 29th is a date that comes into existence just once every four years. It is also the birthday of Thais - author Anne-Dauphine Julliand's darling daughter - who died of a genetic disease. Thais lived just shy of her fourth birthday. She had a short life but good one. As this special day is about to reappear on her calendar for the first time since her daughter passed away, Anne-Dauphine struggles with how to mark this momentous occasion. She wants to live fully on this special day: Thais would have been eight years old.

Clem Bastow grew up feeling like she’d missed a key memo on human behaviour. She found the unspoken rules of social engagement confusing, arbitrary and often stressful. Friendships were hard, relationships harder and the office was a fluorescent-lit nightmare of anxiety. It wasn’t until Clem was diagnosed as autistic, at age 36, that things clicked into focus. Clem reflects as an autistic adult on her formative experiences as an undiagnosed young person, from the asphalt playground of St Joseph's Primary School in Melbourne to working as an entertainment journalist in Hollywood.