Showing titles in People with Disabilities

Negli ultimi decenni si è verificata una profonda rivoluzione nella cura della sclerosi multipla, una disfunzione del sistema immunitario che colpisce 122.000 italiani e 2,5 milioni di persone nel mondo. Grazie allo sviluppo di nuovi farmaci sempre più efficaci e a fondamentali scoperte, dai fattori di rischio genetici e ambientali al ruolo rigenerativo delle cellule staminali nel cervello, ora, finalmente, la vita delle persone che soffrono di questa malattia è sempre più vicina alla normalità.

Lorenzo Amurri non nasce come scrittore, lo diventa in seguito a un tragico incidente di sci che, a soli 26 anni, frantuma la strada artistica sulla quale viaggiava sin da giovanissimo: chitarrista rock, produttore musicale. Un ragazzo dinamico e trasgressivo senza mezze misure. Dall'incidente e dalla sua nuova condizione segnata dalla tetraplegia e dall'impossibilità di stringere ancora tra le braccia la sua chitarra, Lorenzo rinasce. Nel 2008 decide di affidare al suo blog Tracce di ruote "riflessioni, denunce e cronaca della sua seconda vita".

NATIONAL BESTSELLER It never gets better, but it does get easier. That's the first thing Roz says to anyone who asks him for advice. Anyone who's fighting like hell, just hanging on or putting the pieces back together. When you're broken, fixed becomes an obsession. Roz is a multi-platform...

In 1895, a specialist straps five-year-old Katharine Hathaway, then suffering from spinal tuberculosis, to a board with halters and pulleys in a failed attempt to prevent her from becoming a “hunchback” like the “little locksmith” who does odd jobs at her family’s home. Forced to endure her confinement for ten years, Katharine remains immobile until age fifteen, only to find that none of it has prevented her from developing a deformity of her own. 

Bill Rush lived with a significant disability of quadriplegic cerebral palsy. He did not have use of his arms, hands, or voice. Society’s prejudices proved to be a greater obstacle than his disability in attaining his first life goal of completing college. Rush chronicled his extraordinary life from childhood until graduation from the University of Nebraska - Lincoln in Journey Out of Silence, first published in 1986. This second edition brings back into print Bill's original chronicle. It also contains an introduction to Our Life Our Way, the sequel.

A Michele La Pusata, dodici anni fa, è stata diagnosticata la Sclerosi laterale amiotrofica, meglio conosciuta come SLA. Prima, la sua era una vita più che normale, tra figli, lavoro e piccole incombenze, poi non lo è stata più. Non si mette mai in conto di affrontare una malattia lenta e invalidante come questa e infatti nessuno è preparato.

A profoundly beautiful memoir about disability, difference, and living as a vulnerable body. Jan Grue had just become a father when he inherited a stack of his childhood medical records. Following a diagnosis of spinal muscular atrophy at the age of three, the raft of doctors' notes, clinical descriptions and case histories defined his body as defective and his future as bleak and limited. They conjured a childhood nothing like the one he remembered, that failed to anticipate the life he lived now. "I Live a Life Like Yours" is Grue's beautiful, groundbreaking search for a literary language that could better tell his story.

In this unique and exhilarating autobiography, Allan Jones - Canada’s first blind diplomat - vividly describes how an untreatable eye disease slowly decimated his visual world, most challengingly during his postings in Tokyo and New Delhi, and how he discovered and took to heart the revelatory Indian philosophy that changed his life.

Type 1 diabetic, fitness fanatic, dancing queen, Canasta champion; only some of the tags used to describe Colleen Ashby. Daughter, sister to five brothers, wife, and mother of three sons further define Colleen. Add to that, she is a heart transplant recipient who is now visually impaired, and you realize there is much more to learn.

In 2012, combat engineer Curtis McGrath was serving in the Australian army in Afghanistan when, in the line of duty, he stepped on a mine. Seriously injured but still conscious and aware he'd bleed out and die within minutes, McGrath, as the unit's chief first-aid officer, directed his comrades to apply tourniquets and administer an IV and morphine. Then, as he was stretchered to a helicopter, fearing he would never see his family again, he joked that he planned to become a Paralympian.

This short biographical work describes the experiences of Chimezie Ihekuna, a Nigerian man born with a facial deformity. From one scenario to the next, Chimezie encounters ostracisation and indifference from peers and elders alike. He reflects candidly here on the impact this has had on his life. His story is an invitation to empathy for all those who listen.

Just like fox, Heidi has lived on the outer. The ‘official record’ of her life has been her mental health record: primary diagnosis – schizoaffective; comorbidity – major depression, juvenile autism and not her own memories. This is the living, breathing version of Heidi’s mental health file that psych wards, doctors, mental health staff or rehab workers know little about or worse, use as evidence of diagnoses. This is Heidi’s account of what happened, shadowed by the story of a fox who knows he'll never belong.

Frederick Moore spent his 1950s Minneapolis childhood obsessively teaching himself guitar and writing songs. In the 1960s, his bands Skogie and the Flaming Pachucos reached local stardom. After, they put everything they had into their cars and caravanned to Los Angeles. From a garage in suburban Arleta, they evolved Skogie into a new band called The Kats. In the 1980s, The Kats sold out every major club in Los Angeles.

At once heartbreakingly honest and strikingly witty, Holding On by Letting Go is the unforgettable true story of one woman's journey through despair to acceptance and hope. Ultimately, it is a portrayal of the light that can be found in the darkest of times.

Graham Hale Gardner died before turning 23 and never learned to walk or speak due to severe cerebral palsy complicated by epilepsy. Yet he left a legacy of love and compassion that deeply moved scores of people from widely different backgrounds. Graham’s story, written through the eyes of his father, speaks of the enormous legacy left by a boy who never spoke. A story that raises provocative questions about the “invisible lines of connection” that make us human.

Be inspired by the story of Kevin Atlas (formerly Laue), whose faith and perseverance helped him become an NCAA Division I basketball player, despite being born with only one arm. Even before entering the world, Kevin Atlas was a fighter. He should have died in childbirth, as the umbilical cord...

In Everything Is Going to be K.O. Kaiya Stone writes about her own experiences of living with specific learning difficulties: from struggling at school to being diagnosed with dyslexia and dyspraxia while at university, to performing her own one-woman stand up show inspired by her journey. Always funny and unfailingly honest, Kaiya outlines the frustrations of having SPLDS but also the ways in which they have fuelled her creativity. 

A moving memoir from the mother of a child with Treacher Collins Syndrome, with a foreword by R.J. Palacio, author of Wonder For Magda Newman, normal was a goal—she wanted her son Nathaniel to be able to play on the playground, swim at the beach, enjoy the moments of childhood that are often...

Find Another Dream, written and performed by Maysoon Zayid, is the true story of how a Muslim Jersey girl with cerebral palsy creates her own path to stardom. The daughter of Palestinian immigrants, as a child she dreamed of one day dancing on Broadway. As a teen, a bubble-bursting choreographer told her to “find another dream”, so she set her sights on becoming a soap star, undeterred by the fact that the odds were against her.

Hearing Maud: A Journey for a Voice is a work of creative non-fiction that details the author’s experiences of deafness after losing most of her hearing at age four. It charts how, as she grew up, she was estranged from people and turned to reading and writing for solace, eventually establishing a career as a writer. Central to her narrative is the story of Maud Praed, the deaf daughter of 19th century Queensland expatriate novelist Rosa Praed.