• Episode 14: Mindfulness in the Face of ADHD, Anxiety, and Needle Phobia
    Dec 30 2025

    ADHD, anxiety, and needle phobia, oh my! Join guest host Cindy Reasor as she interviews HPP caregiver and Licensed Professional Counselor (LPC) Christine McGowan. What is ADHD and anxiety? How is it diagnosed? When to seek professional help. Tune in to learn more.

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    Instagram: @softboneshpp

    Facebook: Hypophosphatasia: The U.S. Soft Bones Foundation

    X: @SoftBonesHPP

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    32 mins
  • Episode 12: A Taste of Mindfulness with Alison S.
    Apr 30 2025

    💚 May is Mental Health Awareness Month. For many patients living with a rare disease, stress, anxiety, and other mental challenges can manifest in different ways. Join guest host Cindy Reasor as she interviews certified health coach and HPP patient Alison S. What is stress? How can we manage it? Why is it important? Tune in!

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    40 mins
  • Episode 10 - A Conversation with Guest Host Cindy Reasor and Sue Krug
    Dec 5 2024

    Join guest host Cindy Reasor as she chats with patient and Soft Bones Patient Liasion, Sue Krug.

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    15 mins
  • Episode 9 - A Conversation with Guest Host Aaron Blocker and Deborah Fowler
    Oct 28 2024

    In this special episode, Aaron Blocker is guest hosting to discuss hypophosphatasia (HPP), a rare genetic bone disease that they live with. They interview Deborah Fowler, the founder of Soft Bones, a foundation that provides support, resources, and advocacy for those affected by HPP. Together, they explore the journey of living with HPP, advances in treatment, and the critical work Soft Bones is doing to raise awareness and provide hope to the HPP community. This conversation offers valuable insights for both patients and those looking to learn more about the condition.

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    29 mins
  • Episode 8 - Be Involved: A Conversation with Patient, Caregiver, and Advocate, Janni K.
    Jul 26 2024

    Featuring guest host Cindy Reasor and patient Janni K.

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    11 mins
  • Episode 6 - A Conversation with Lindsey W. And How HPP Has Shaped Her Life
    Mar 8 2024

    Featuring guest host Cindy R. and Region Lead and Patient Lindsey W.

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    22 mins
  • Episode 5 - PFDD
    Nov 10 2022

    PFDD (Patient-Focused Drug Development)

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    10 mins
  • Episode 4 - The Meg Foundation
    Sep 7 2022

    Featuring Jody Thomas

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    40 mins