Episodes

  • Episode 47 with Melanie Colter
    Jan 29 2026

    In the forty seventh episode of HC&U, we interview Melanie Colter.

    Melanie is the mom of Classical HCU patient, Masen. Listen along as Melanie gives us an update on Masen's and his family's journey with a late diagnosis of HCU.

    During Lindsey's Low Pro Bitesss, we talk about vegetarian Irish stew.

    Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

    Check out HCU Network America!

    HC&U on Facebook

    Find Our Low Protein Ideas on Instagram!

    HC&U on Twitter

    HCU Network America on Twitter

    What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

    Share your NBS story with HCUNA!

    Masen's Story

    Vegetarian Irish Stew

    #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u

    Show More Show Less
    43 mins
  • Episode 46 with Alicia and Miguel Gonzalez
    Dec 18 2025

    In the forty sixth episode of HC&U, we interview Alicia and Miguel Gonzalez.

    Alicia and Miguel are the parents of cobalamin C patient, Andrea. Hear their story about their family's journey to diagnoses and the challenges and successes of living with cobalamin C.

    During Lindsey's Low Pro Bitesss, we talk about kung pao chick peas.

    Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

    Check out HCU Network America!

    HC&U on Facebook

    Find Our Low Protein Ideas on Instagram!

    HC&U on Twitter

    HCU Network America on Twitter

    What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

    Share your NBS story with HCUNA!

    Andrea's Story

    Kung Pao Chick Peas

    #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u

    Show More Show Less
    40 mins
  • Episode 45 with Tiny and Tomas Devitos
    Nov 27 2025

    In the forty fifth episode of HC&U, we interview Tiny and Tomas Devitos.

    Tiny and Tomas are the parents of classical HCU patient, Alexander. Hear their story about their family's journey to diagnoses and the challenges and successes of living with classical HCU.

    During Lindsey's Low Pro Bitesss, we talk about crunchwraps.

    Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

    Check out HCU Network America!

    HC&U on Facebook

    Find Our Low Protein Ideas on Instagram!

    HC&U on Twitter

    HCU Network America on Twitter

    What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

    Share your NBS story with HCUNA!

    Alexander's Story

    #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u

    Show More Show Less
    29 mins
  • Episode 44 with Zara Bono
    Oct 30 2025

    In the forty fourth episode of HC&U, we interview Zara Bono.

    Zara is the mother of Severe MTHFR patients, Zoraiz and Areeba. Hear Zara's story about her family's journey to diagnoses and the challenges and successes of living with Severe MTHFR.

    During Lindsey's Low Pro Bitesss, we talk about pancake tacos.

    Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

    Check out HCU Network America!

    HC&U on Facebook

    Find Our Low Protein Ideas on Instagram!

    HC&U on Twitter

    HCU Network America on Twitter

    What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

    Share your NBS story with HCUNA!

    Zoraiz's and Areeba's Story

    #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u

    Show More Show Less
    30 mins
  • Newborn Screening Bonus Episode 2025
    Sep 25 2025

    In this bonus episode of HC&U, we present Ben's conversation with Erica Wright, a clinical genetic counselor at The Children's Hospital Colorado and Assistant Professor at the University of Colorado Anschutz Medical Campus for Pediatric Clinical Genetics and Metabolism and Greg Bonn, Program Manager for the Colorado Newborn Screening Program.

    During Lindsey's Low Pro Snacksss, we talk about maple spice chips.

    Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

    Check out HCU Network America!

    HC&U on Facebook

    Find Our Low Protein Ideas on Instagram!

    HC&U on Twitter

    HCU Network America on Twitter

    What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

    Share your NBS story with HCUNA!

    #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u

    Show More Show Less
    48 mins
  • Episode 43 with Liz Gonzalez
    Sep 25 2025

    In the forty third episode of HC&U, we interview Liz Gonzalez.

    Liz is the mother of classical HCU patients, Everett and Clementine. Liz and I discuss her family's journey to diagnosis and the challenges and successes of living with HCU.

    During Lindsey's Low Pro Bitesss, we talk about pancake tacos.

    Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

    Check out HCU Network America!

    HC&U on Facebook

    Find Our Low Protein Ideas on Instagram!

    HC&U on Twitter

    HCU Network America on Twitter

    What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

    Share your NBS story with HCUNA!

    Everett's and Clementine's Story

    #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u

    Show More Show Less
    42 mins
  • Adulting 101 Bonus Episode
    Sep 18 2025

    In this bonus episode of HC&U, we present our Adulting 101 panel from September 11, 2025. This was a joint effort between HCU Network America and the MSUD Family Support Group. Gabbi Lewis and Ben represent the HCU community.

    During Lindsey's Low Pro Snacksss, we talk about pickle salsa.

    Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

    Check out HCU Network America!

    HC&U on Facebook

    Find Our Low Protein Ideas on Instagram!

    HC&U on Twitter

    HCU Network America on Twitter

    What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

    Share your NBS story with HCUNA!

    #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u

    Show More Show Less
    1 hr and 6 mins
  • Episode 42 with Brittany Parke
    Aug 28 2025

    In the forty second episode of HC&U, we interview Brittany Parke.

    Brittany is the mother of cblG patients, Drew and Grayson. Brittany and I discuss her family's journey to diagnosis and the challenges and successes of living with cblG.

    During Lindsey's Low Pro Bitesss, we talk about taco stuffed sweet potatoes.

    Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

    Check out HCU Network America!

    HC&U on Facebook

    Find Our Low Protein Ideas on Instagram!

    HC&U on Twitter

    HCU Network America on Twitter

    What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

    Share your NBS story with HCUNA!

    Grayson's Story

    #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u

    Show More Show Less
    47 mins