Hazmir, 42, was diagnosed with Motor Neurone Disease (MND) in February 2025, and only three months later his family rallied to raise $30,000 for Fight MND in his honour. Guided by a deep faith, he approaches his future with joy, hope, and unwavering determination. Since his diagnosis, Hazmir has become an active and passionate member of the MND community through his involvement in both LEN and LERAP. He has also written a book and is the focus of a documentary that captures his life, resilience, and impact since receiving his diagnosis.

He also has a You Tube channel "MND Hacked" a channel dedicated to outsmarting Motor Neurone Disease with cutting-edge technology. From eye-tracking gaming setups, robotic legs and voice-banking AI to smart home automation that defies physical limits—he explores the digital tools that keep us connected, creative, and in control. The body might glitch, but the mind is limitless. Let's hack the diagnosis".

https://youtube.com/@hazhacked?si=cIwBYxhTyEnIIBUW

Dr. Karen Hutchinson, is an Honorary Research Fellow at Macquarie University and Anthea Smith whose partner, Jason, lives MND are two authors of a recently published research paper, "'Finally, in Hands I Can Trust': Perspectives on Trust in Motor Neurone Disease Care." It explores how individuals with Motor Neurone Disease (MND) build trust with healthcare providers and the importance of that trust for their quality of life. It also represents a sentiment of finding reliable support, which can be crucial for people with MND and their families.

You can read the article here

https://rb.gy/amovj9

Janet Hough was diagnosed with MND in June 2023.

Janet and her husband Peter are a true team and focus on what brings them joy on their MND journey.

They have started a monthly MND Mornington Peninsula group

They are organising a MND Victoria - Event - Walk for a Cause - Mornington Peninsula - on October 5th at Mornington Park. You can find out more about the walk here https://share.google/o0XrbBYHZ6Lv7PU9N

Janet is involved in LERAP and the LEN and is a co-investigator on various care studies.

She has attended the international MND conference, given presentations at different seminars. Janet is an advocate for how important it is for researchers to work closely with PLEx.

Janet and Peter are not ignoring the fact that MND is a life-limiting disease. They know life has its challenges in unexpected ways for everyone, and they have to face these and continue to live their best lives.

Peter Chambers was diagnosed with MND in 2019.

Whilst Peter does not deny the challenges MND have given him, he is living his life with intention, joy and a seriously wicked sense of humour which he delivers to us via videos

He has an alter ego, "Cranky Pete", who points out the ridiculous and things he just doesnt like.

Peter's website, where you can find out all "things Peter" is

peterchambersmnd.com

In 2023, Neil Dyson and his wife, Maree Stanley, had just retired after running a successful business.

Neil was then diagnosed with MND

Nei and Maree take us through the story to date and how they are living as best they can with MND.

The Firies Climb for MND was created in 2015 by firefighter Matt Pridham after his best friend, Adam Regal, was diagnosed with MND. After learning that there was no known treatment or cure, they became determined to join the fight to find one. Together, they pledged to raise as much money and awareness for MND as possible.

All funds raised go to Prof. Dominic Rowe's Macquarie University Centre for Motor Neurone Disease Research. It is the largest MND research centre in Australia, receives no federal or state funding to operate and is completely run through the support of public donations and research grants. All researchers work together in one facility, on one topic, with one vision: a world without MND.

You can join or donate here https://firiesclimbformnd.org.au/cms/home

On June 22, 2023, Ron "Hobbo" Hobden's life changed in a single sentence: You have motor neurone disease. No cure. No treatment. Just a brutal countdown he never saw coming.

A week earlier, the 40-year-old rugby player, devoted husband, and proud dad to Lizzie, 5, and Henry, 3, had been training for a marathon. Fit, strong, and full of plans, he had no reason to imagine his future would be cut short.

"I remember Annie sitting beside me, trying to hold back her tears," Ron recalls. "All I could think about was our kids. How do you tell them their dad is dying?"

Instead of surrendering to despair, Ron made a decision that day: MND would shape his life, but it would not define it. It might take his body, but it would never take his fight, his love, or his determination to inspire others.