In this episode of Parkinson's EmPower Talks, our guest is Stephanie Johnson, founder of the Rick Johnson Parkinson's Disease Registry and the Parkinson's Disease Alliance of Wisconsin.

She will share what led her to become an advocate for the Parkinson’s community and the importance of a statewide Parkinson’s registry. We’re grateful to have her with us to discuss this important work.

Stephanie's EmPowering message is, "Connect with your values and the values that pull you forward, that give you a sense of meaning and purpose and hope. I think there's room for everybody to do a little something to make an impact and make change."

Parkinson's Disease Alliance of WI Website link: https://www.pdalliancewi.org/
Take Action Today: https://emboldenwi.salsalabs.org/pdregistry0/index.html

To watch this episode on YouTube: https://youtu.be/aJxJ6w4uY98

To support more programs like this: https://wiparkinson.app.neoncrm.com/forms/support-parkinson-empowertalks

Wisconsin Parkinson Association
website: https://wiparkinson.org/
YouTube: https://www.youtube.com/@wiparkinson
facebook: https://www.facebook.com/wiparkinson/
instagram: https://www.instagram.com/wiparkinson/

Discussion with Lisa Dickas, SLP - In this episode with Lisa, we will discuss the topic of speech therapy.

Lisa's EmPowering message is, "You can still make important and meaningful gains despite the diagnosis. You can take some things back from Parkinson's; it is not a one way street. The hardest part is the start. You can start now with adding good habits and dumping the bad ones, and really trying to set your current and future self up for as many options as possible."

To watch this episode on YouTube: https://youtu.be/miZCaF2YtP8

To support more programs like this: https://wiparkinson.app.neoncrm.com/forms/support-parkinson-empowertalks

Wisconsin Parkinson Association
website: https://wiparkinson.org/
YouTube: https://www.youtube.com/@wiparkinson
facebook: https://www.facebook.com/wiparkinson/
instagram: https://www.instagram.com/wiparkinson/

Discussion with Christian Biegel, DPT - In this episode with Dr. Biegel, we will discuss the topic of Alternative Therapies for PD.

Dr. Biegel's EmPowering message is, "if you don't use it you lose it, motion is lotion, and be an active participant in your health and wellness care."

To watch this episode on YouTube: https://youtu.be/Ka_O0okdsGU

To support more programs like this: https://wiparkinson.app.neoncrm.com/forms/support-parkinson-empowertalks

Wisconsin Parkinson Association
website: https://wiparkinson.org/
YouTube: https://www.youtube.com/@wiparkinson
facebook: https://www.facebook.com/wiparkinson/
instagram: https://www.instagram.com/wiparkinson/

Discussion with Bryanna Bruger, PsyD - In this episode with Bryanna, we will discuss the topic of Overcoming Apathy: Strategies for Increased Motivation & Engagement.

Bryanna's EmPowering message is, "To know that there is hope, and to keep putting one foot in front of the other no matter how hard it may seem, especially in the context of apathy. There are people out here willing to help and share information and get you on the right track."

To watch this episode on YouTube: https://youtu.be/cGfem9Ca_4Y

To support more programs like this: https://wiparkinson.app.neoncrm.com/forms/support-parkinson-empowertalks

Wisconsin Parkinson Association
website: https://wiparkinson.org/
YouTube: https://www.youtube.com/@wiparkinson
facebook: https://www.facebook.com/wiparkinson/
instagram: https://www.instagram.com/wiparkinson/

Discussion with LeAnn Lanthrop, MSW, LCSW - In this episode with LeAnn Lanthrop, we will discuss the topic of Accessing PD Support & Resources.

LeAnn's EmPowering message is, "Don't wait for a crisis to find your resources and your information...Know where to find your resources but don't wait for a crisis to happen."

To watch this episode on YouTube: https://youtu.be/c6lsM0CNKCk

To support more programs like this: https://wiparkinson.app.neoncrm.com/forms/support-parkinson-empowertalks

Wisconsin Parkinson Association
website: https://wiparkinson.org/
YouTube: https://www.youtube.com/@wiparkinson
facebook: https://www.facebook.com/wiparkinson/
instagram: https://www.instagram.com/wiparkinson/

Discussion with Kate Harrell, MS, RDN - In this episode with Kate Harrell, we will discuss the topic of Nutrition in Parkinson's Disease.

Kate's EmPowering message is, "My biggest thing is staying positive and putting one step in front of the other and knowing that you are doing a good job and a good thing to take care of your body."

To watch this episode on YouTube: https://youtu.be/sBZXzzXByoA

To support more programs like this: https://wiparkinson.app.neoncrm.com/forms/support-parkinson-empowertalks

Wisconsin Parkinson Association
website: https://wiparkinson.org/
YouTube: https://www.youtube.com/@wiparkinson
facebook: https://www.facebook.com/wiparkinson/
instagram: https://www.instagram.com/wiparkinson/

Discussion with Dr. Lisa Kokontis - In this episode with Lisa Kokontis, MD, we will discuss the topic of Memory Changes. Dr. Kokontis explains the different types of memory problems, including that of normal aging. Dacy and Dr. Kokontis discuss how memory disorders are diagnosed and treated as well as what can be done to improve memory function. You will learn what to report to your doctor and ways caregivers can help their loved one who is experiencing memory changes.

Dr. Kokontis' EmPowering message is, "Get out there and exercise every day. You're helping yourself, you're helping your future. Whatever it takes, do it!"

To watch this episode on YouTube: https://youtu.be/OYghC-P9WoY

To support more programs like this: https://wiparkinson.app.neoncrm.com/forms/support-parkinson-empowertalks

Wisconsin Parkinson Association
website: https://wiparkinson.org/
YouTube: https://www.youtube.com/@wiparkinson
facebook: https://www.facebook.com/wiparkinson/
instagram: https://www.instagram.com/wiparkinson/

Discussion with Dr. Katie Spangler - In this episode with Katie Spangler, MD, we will discuss the topic of Low Blood Pressure. Not everybody experiences this symptom of Parkinson’s, but for those who do it can be very dangerous and increase their fall risk. Dr. Spangler explains why low blood pressure occurs, how it is treated, and tips for managing it at home. Dacy and Dr. Spangler discuss how mobility and what we consume affects low blood pressure and share ways caregivers can help their loved one who is experiencing it.

Dr. Spangler’s EmPowering message is, "You have Parkinson’s, but don’t let Parkinson’s have you”. Yes its something you need to manage but work with your provider because there is a lot you can do on your own to self manage your disease. Every patient that I have that tends to self manage does better.

To watch this episode on YouTube: https://youtu.be/INIQXh1pnGc

To support more programs like this: https://wiparkinson.app.neoncrm.com/forms/support-parkinson-empowertalks

Wisconsin Parkinson Association
website: https://wiparkinson.org/
YouTube: https://www.youtube.com/@wiparkinson
facebook: https://www.facebook.com/wiparkinson/
instagram: https://www.instagram.com/wiparkinson/