The American Academy of Dermatology is calling November "National Healthy Skin Month"; we're celebrating by talking everything EDS, mast cells and healthy skin!

Resources:

Skin Features of EDS

Mast Cell Skin Features

Mast Cell Biopsies

This week I share more of my story with tips for navigating our complex, inefficient, and, sometimes ineffective healthcare system with the hopes of encouraging those like me struggling through this process.

Above all else I hope to get the message across that a bad appointment, a bad provider, a disappointment does not mean that you will not receive the answers and treatment that you need! I encourage you to keep on keeping on, things can get better.

EDS Providers Directory

Mast Cell Providers

This week on the podcast we talk running with Ehlers Danlos Syndrome! I share a brief overview of my personal experiences from my twenty years of running and racing. I also offer advice based on those experiences that are relevant to those running with EDS or other health issues, as well as beginning runners in general.

Educational Resources:

Chi Running

Exercise and POTS

⁠Aerobic Exercise and Pain Relief

PT and EDS

OT and EDS

⁠Great Resource for PT and Hypermobility

Common Running Injuries

Run Prehab Exercises

⁠Mast Cell-mediated Inflammation and Delayed Wound Healing⁠

Run Recovery Tips

Drills for Running Form

Zone 2 Cardio

⁠Mileage Progression - Progress mileage at half the rate if you are hypermobile!

This week on the podcast we recognize October as ADHD Awareness Month. I share my experiences with ADHD and offer some tips and tricks that have worked for me.

I also discuss the increased prevalence of ADHD in those with Ehlers Danlos Syndrome. I posit a possible mast cell link involving dopamine, melanin & KIT.

Below are resources on these topics:

Stigma & Delays in Care for ADHD

ADHD & EDS

Melanin, Dopamine & Neuroimmunology

Tips, Habits, & Lifestyle Changes for ADHD

Pomodoro for ADHD

EMDR & ADHD

This week we acknowledge Dysautonomia Awareness Month and discuss the autonomic nervous system, dysautonomias, and associated problems. I go on to give updates on my health and my goals!

More information:

Dysautonomia

Postural Orthostatic Tachycardia Syndrome

Mast Cells and Dysautonomia

Ehlers Danlos and the Spine

I introduce myself and the podcast and give you guys an idea of what’s to come!

More information:

Ehlers Danlos Syndrome

Mast Cell Disease

Osteopenia

Sleep Apnea