#speakurmnd365

The latest and last episode of season 1 of the speak your MND podcast with me @mummybarrow is a little different, its just me hosting, when we started the speak your MND Podcast there were a few goals that @mbarrow1 and I had in mind, I wanted to host the show using my eye gaze and cloned voice.

We wanted our guests to be from all walks of life from living with MND, Carers to Fundraisers, who all have a their own amazing stories to share.

We wanted a podcast for the community, brought to you by the community.

We also wanted music to accompany the podcast, composed by someone from the community, Thank you @aphplusplus 🫶

We wanted to share the highs, the lows, the good, the bad and the ugly, the wins, the losses and to try and serve up some advice and let you al know that your not alone on this journey, and thanks to the amazing guests I think we have achieved this.

But one of my personal goals was to host an episode alongside a fellow individual living alongside MND, using only our Eye Gaze devices, and I had the person in mind from day one.

Mark has been apart of my MND journey from the very start, he’s a source of knowledge and experience, he’s a good ear when i need to vent, he’s the reassurance I need when I’m making tough decisions and most importantly he’s always ready to take the piss out of me and remind me not to take life to seriously.

Mark has been on this journey for over 4 years, he’s had his ups and downs, but Mark alongside his wife Steph have huge hearts and work tirelessly to help other families on the same journey through the MNDefiance Trust.

And we will return in June 🫶

Anna 🧡

#mndawareness #podcast

Welcome to the Midnight Debrief

Steph and I are joined tonight by Joe DeBoise, a friend of Steph and Marks, a friendship brought together through MND.

I asked Steph, Let’s get a guest on, last episode before the break, and there was only one person Steph wanted on the podcast or Poddy-C as Joe calls it.

Joe has sacrificed his body and time to ensure the MNDefiance trust got up and running, and the challenges that Joe has undertaken to raise vital funds for the trust is truly remarkable.

Joe is an amazing artist, an ok surfer and an incredible friend.

We still find time to discuss all things caring, latest purchases and what’s for tea.

I will leave it there….have a listen

Catch you soon

Steph & Martyn

This Week Anna and I chat with Stacey Kirkpatrick

Stacey lost her dear mum Gerry back in 2005 and as you will hear in this weeks episode its as still as raw and upsetting as it was 21 years ago.

In this weeks episode we talk about Stacey’s mums MND journey, loss, and the years that followed, with Stacey taking on numerous challenges raising awareness and funds for MND Scotland and the MNDA, we also talk about Stacey’s career as an estate agent to moving in to the charity sector.

In the past 12 month Stacey followed her heart after volunteering for the MNDA Manchester branch for a number of years, after leaving her role at another charity, Stacey now works for the MND Association as a area fundraiser, helping individuals on their own fundraising journey.

Thank you for listening, see you next time for the final episode of season one

Anna & Martyn

This Weeks Episode, Steph and I catch up on what is always a busy previous two weeks

A lot to catch up on from latest to show, what’s for tea and we talk all things feeding when living alongside MND, from feeding tubes, to what is on the menu that’s manageable.

we talk about the highs and the not so highs of the previous two weeks, as always with a bit of laughter thrown in the mix.

We promise that it’s not planned…. But every midnight debrief has been and hour and 3 minutes!

Thank you to everyone for the messages of support and we hope you continue to enjoy the debriefs.

Steph & Martyn

This weeks Episode, Martyn and I chat with Lynn, A truly inspiring women who Martyn and I have had the pleasure to know on our own personal MND journey, and someone who we call a dear friend.

Lynn openly talks about the darkest of days, from her beloved Mel's MND diagnosis, Losing her soulmate Mel, but how this anger has fuelled her to drive and determination to help others 'Her MND family' to one day find treatment and a cure.

This episode is a honest, raw and open conversation but left us feeling uplifted and it's comforting knowing that there are amazing individuals like lynn fighting for us.

Again, plenty of tears and plenty of laughter

Thank you Lynn

Anna and Martyn

This Week Steph and Martyn talk all things caring.

What's been happening the past 2 weeks, the highs the lows, the challenges, the wins.

They chat about the rugby team coming for hot dogs and rugby, the road trips that cause nothing but stress and uncomfortableness, the impromptu eBay buys and near misses.

the midnight debrief is taking the daily chats to podcast to share with you the real world of caring alongside MND

Thank you for your questions, keep them coming and we will be covering these on a near future episode.

Thank you for listening

Steph & Martyn

On this weeks Episode Martyn and I, Chat to Wife, Mum and Carer, An Amazing, strong woman who is navigating her way through life alongside MND

Nicola Minor gives her time for talk about her personal journey, her husband Paul's Diagnosis, the challenges, the upheaval and the love and support from friends and family.

Nicola shares light on The dark days, the good days, the challenging days and her 'Why'

it was an emotional and honest chat, with laughter and some tears.

✌️ & 🧡🧡

Anna and Martyn

Welcome to the ‘The Midnight Debrief’

A new kind of episode featuring a new Host, Steph Williams, the midnight debrief spin off series focuses on the role of caring alongside MND,

Like myself Steph is a ‘carer’ Steph cares for her husband Mark, she is a Mum, Wife, MND advocate supporting families through Steph and Mark’s foundation the MNDefiance Trust.

Steph and I have become close friends as we navigate this ‘Shit Show’ of a Journey that is MND, during this time Steph and I often message each other at all hours, normally around midnight, discussing our day or what tomorrow will hold in store, so we thought, lets take these to the podcast.

We will be talking all things caring, parenting, friends and family, Holidays, MND Community, finances, relationships and intimacy.

We will be talking about some very serious topics, but what I can guarantee is that you will be laughing alongside us and the occasional tear.

We would love to have you involved in our conversation so please ask any questions and will will be sure to talk about these on the podcast.

Steph and I look forward to sharing more of our journey, stories, our successes and absolutely our mistakes or Fuck up’s as we like to call them

A warning…there will be some explicit language used during the episodes.

Thank you

Steph & Martyn