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Spotlight Lipedema

Spotlight Lipedema

Written by: Lori Pellnitz
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About this listen

Spotlight Lipedema focuses on bringing together people, mostly but not exclusively women, living with lipedema and lipo-lymphedema. We will share stories, what has helped and what has aggravated our lipedema. Spotlight Lipedema will also feature some lipedema and lymphedema experts from the community to help us learn more about current management techniques and what is happening with lipedema research. Hygiene & Healthy Living
Episodes
  • Episode 15 - CurvyGirlBeth - Pt. 2 with Beth Rylaarsdam
    May 2 2022

    It's finally out! Episode 15 of the Spotlight Lipedema is out - featuringPart 2 of my interview with Beth Rylaarsdam. This was a great conversation about how CurvyGirlBeth made her debut. We talk about how lipedema ladies tend to hide from picture or hide themselves and their legs in pictures and why Beth thinks that needs to change. How do we share knowledge of lipedema when we encounter people that appear to have it too. 

    Find Beth Here:

    https://thecurvygirlbeth.com/links/

     Instagram: https://www.instagram.com/curvygirlbeth/

    Facebook: https://www.facebook.com/Curvygirlbeth

    TikTok: https://www.tiktok.com/@curvygirlbeth

     

    All Music courtesy of Jason Shaw at Audionautix - https://audionautix.com/index.php

     

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    1 hr and 1 min
  • Episode 14 - Talking Lipedema with Beth Rylaarsdam (CurvyGirlBeth)- Part 1
    Dec 13 2021

    It's finally out! Episode 14 of the Spotlight Lipedema is out - featuring Beth Rylersdaam - Curvy Girl Beth. It was a great conversation - so good that we just kept chatting. So here's Part 1 of our conversation all about Beth's Lipedema discovery and what she's done to manage it.

    Stay tuned for Pt. 2 where Beth talks about how she became Curvy Girl Beth.

     

    All Music courtesy of Jason Shaw at Audionautix - https://audionautix.com/index.php

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    41 mins
  • The Lipedema Foundation - Focusing on Lipedema Research with Dr. Guy Eakin - Episode 13
    Aug 23 2021

    This episode is a bit different than what we've done before. I had the chance to speak with Dr. Guy Eakin, the Chief Science Officer of The Lipedema Foundation. Dr. Eakin provides some background on the Foundation and the work they are doing to provide funding for lipedema research.

    In our conversation, we learn a bit about the main areas of research that are the current focus of The Foundation, what projects they have recently funded, and some of the areas of research that appear promising at this time. We also talk a bit about the challenges of the research and why developing tools for the diagnosis of lipedema is so difficult.

    And finally, we talk about how those of us with lipedema can contribute to lipedema research.

    Lipedema Foundation LInks:

    Home page: https://www.lipedema.org/

    Lipedema Foundation Registry: https://www.lipedema.org/registry

    How to Find a Specialist: https://www.lipedema.org/findspecialists

    Lipedema Brochures: https://www.lipedema.org/brochure

    Foundation Blog: https://www.lipedema.org/blog 

    Innovative Solutions for Lipedema & Lymphedema Symposium 2021 Registration: https://learn.lipedema-simplified.org/holisticsymposium-oct2021

    Intro Music "Walk in the Park,"
    Bumper Music "Folk Bed" and
    Closing Music "In the Field" all courtesy of Jason Shaw at Audionautix - https://audionautix.com/index.php

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    57 mins
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