In this episode, I’m sharing some real-life experiences and lessons learned that I think so many ostomates will connect with.

First, I talk about my recent travel through airport security in Italy — and the unexpected moment when a security guard didn’t understand what my ostomy pouch was. That experience reminded me how important it is to find ways to communicate across language barriers so we can advocate for ourselves with confidence.

I also dive into the importance of pelvic floor therapy for ostomates. Since many of us no longer use certain muscles the same way, therapy can make a huge difference for things like bladder health, painful intercourse, and overall quality of life. I share a bit about my own journey, including how my therapist is helping me with adhesions — and why it’s always essential to check with your doctor first before starting something new.

Finally, I highlight Hollister’s upgraded pouches and the improvements they’ve made to support comfort and confidence in daily life.

✨ Whether you’re traveling, navigating health challenges, or exploring new products, I hope this episode encourages you and reminds you that you’re not alone.

In this episode, LeeAnne Hayden speaks with Sandra Mannon about her journey with scleroderma and the decision to undergo an ileostomy. Sandra shares her experiences as a trauma nurse and the challenges she faced after being diagnosed with a rare autoimmune disease. The conversation delves into the complexities of her medical journey, the emotional impact of transitioning to life with an ostomy, and the importance of patient advocacy. Sandra reflects on her past year of healing and adaptation, highlighting the resilience required to navigate her health challenges. In this conversation, the speaker shares her personal journey of overcoming the challenges of living with an ostomy due to scleroderma. She discusses the emotional and physical struggles she faced, including feelings of defeat and despair, and how she found healing through mindfulness practices such as meditation and yoga. The speaker emphasizes the importance of acceptance and positivity in redefining her identity and living life fully despite her condition. She also shares practical tips for managing life with an ostomy and encourages others to embrace their strength and resilience.

Takeaways

• Sandra's journey with scleroderma began after a meningitis infection.
• She faced multiple health challenges, including bowel obstructions and reflux.
• The decision for an ileostomy was a significant turning point in her life.
• Sandra emphasizes the importance of being your own health advocate.
• Her experience highlights the complexities of managing a rare autoimmune disease.
• Post-surgery, she encountered unexpected complications, including infections and prolapses.
• The emotional impact of transitioning to life with an ostomy was profound for her.
• Sandra's medical background provided her with knowledge but also created challenges in accepting her situation.
• She learned to navigate her health challenges with resilience and determination.
• The past year has been a journey of healing and adaptation. I was just exhausted.
• I wanted to die.
• I truly, truly believe that I had a healing there.
• Life is now good.
• I eat by gravity.
• I want to live my life.
• It's just so easy.
• The mind is so powerful.
• This ostomy is not the end of our life.
• Let this show how strong that you are.

Summary

In this episode of the Beautiful Bag podcast, host LeeAnne Hayden is joined by Kimberly Coleman and Jessica Miles to discuss their personal journeys as ostomates, their experiences with Hollister products, and the importance of skin health and advocacy in the ostomy community. They share insights on choosing the right products, the significance of skin care, and the need for support and education for those living with ostomies.

Takeaways

• Kimberly is a stage two colorectal cancer survivor diagnosed at 47.
• Jessica has a genetic collagen disorder leading to her ostomy.
• Choosing the right ostomy products is crucial for comfort and care.
• Skin health is a major concern for ostomates.
• Hollister products have been beneficial for both Kimberly and Jessica.
• Advocacy and education are essential for ostomates.
• Different ostomy products serve different needs at different times.
• Support services like Secure Start can help ostomates navigate their care.
• Active lifestyles can be maintained with the right ostomy products.
• Community support is vital for those living with ostomies.

In this episode of The Beautiful Bag podcast, host LeeAnne speaks with Nina Hayes, a nutritionist and yoga instructor who shares her journey with ostomy and how it has transformed her life. They discuss the importance of yoga and meditation in healing, the challenges of nutrition for those with ostomies, and practical tips for traveling with an ostomy. Nina emphasizes the significance of intuitive eating and how it empowers individuals to listen to their bodies. The conversation concludes with Nina's insights on vulnerability as a strength and resources for those seeking support.takeaways

• Nina's journey with ostomy began in 2002 after her colon was removed.
• Yoga has been a crucial practice for Nina, helping her manage pain and improve posture.
• Intuitive eating allows individuals to trust their bodies and make informed food choices.
• Traveling with an ostomy requires careful planning and packing extra supplies.
• Nina emphasizes the importance of community and support for those with ostomies.
• Practicing yoga can help alleviate adhesions and prevent further surgeries.
• Nutrition for ostomy patients can include pureed vegetables and juices.
• Nina offers a 12-week transformational program for women with ostomies.
• The journey with an ostomy can lead to personal growth and empowerment.
• Vulnerability is a strength that can foster connection and resilience.

In this episode, LeeAnne Hayden interviews Michelle Valentino, who shares her inspiring journey of living with an ostomy after years of battling chronic illness. Michelle discusses her early health struggles, the challenges of motherhood while managing her condition, and the impact of her surgery during the COVID-19 pandemic. She emphasizes the importance of community support, self-acceptance, and resilience in overcoming the stigma associated with living with an ostomy. Michelle's story is a testament to the strength of the human spirit and the power of connection in navigating life's challenges.

Takeaways

Michelle's health struggles began at a young age, leading to a diagnosis of ulcerative colitis.

Embarrassment and fear often prevent individuals from seeking help for health issues.

Life with chronic illness can be challenging, but it doesn't have to define one's identity.

Motherhood brought additional health challenges, but Michelle persevered.

Surgery was a turning point, but the COVID-19 pandemic complicated the process.

Adjusting to life with an ostomy requires patience and support.

Overcoming embarrassing moments is part of the journey to self-acceptance.

Finding a supportive community is crucial for mental health and resilience.

Life after surgery can lead to newfound freedom and energy.

It's important to share experiences to help others feel less alone.

In this episode, Krista shares her inspiring journey of living with Crohn's disease since childhood and her decision to undergo ostomy surgery. She discusses the challenges she faced, including pain and incontinence, and how she advocated for her health. Krista highlights the positive changes in her life post-surgery and offers encouragement to others facing similar health challenges.TakeawaysKrista was diagnosed with Crohn's disease at a young age.She experienced significant challenges before her ostomy surgery.Advocacy for her health was crucial in her journey.The decision for surgery was influenced by her upcoming wedding.Post-surgery, Krista has experienced a better quality of life.She emphasizes the importance of community support on Instagram.Living with an ostomy has brought unexpected positives.Krista encourages others to not let their illness define them.She shares that it’s important to express feelings about health.Life can improve significantly after making difficult health decisions.

In this episode of The Beautiful Bag podcast, host LeeAnne Hayden speaks with Lauren Beach, a Crohn's disease survivor who shares her journey from diagnosis at a young age to living with an ostomy. Lauren discusses the challenges she faced during her teenage years, including health struggles, body image issues, and the impact on her dating life. She emphasizes the importance of self-acceptance, community support, and maintaining a positive outlook. The conversation also touches on fitness and how Lauren has adapted her workout routine post-surgery, proving that a fulfilling life is possible with an ostomy. The episode concludes with Lauren's inspiring message about resilience and finding joy in life despite challenges.TakeawaysLauren was diagnosed with Crohn's disease at 12 years old.She faced significant health challenges during her teenage years.Living with an ostomy has its ups and downs, but it's manageable.Dating can be challenging, but honesty is key.Fitness is still possible and beneficial with an ostomy.Community support on social media has been inspiring for Lauren.Self-acceptance is crucial for mental health and confidence.Accidents can happen, but they are not the end of the world.Positivity can help navigate life's challenges.Lauren encourages others to find joy and gratitude in life.