Episodes

  • The Bloodline Live! Myelodysplastic Syndromes (MDS) Updates in Research

    The Bloodline Live! Myelodysplastic Syndromes (MDS) Updates in Research
    Jan 29 2026
    Mikkael A. Sekeres, MD, MS Curious about what’s new in the world of myelodysplastic syndromes (MDS)? We’re bringing you the latest insights straight from one of the field’s leading experts. In this episode, we speak with Dr. Mikkael Sekeres, of the Sylvester Comprehensive Cancer Center at University of Miami Health. Recorded onsite at the 2025 ASH (American Society of Hematology) Annual Meeting and Exposition, this conversation explores what MDS is, how it’s treated today, and what researchers are learning about managing side effects. Dr. Sekeres also walks us through the most notable MDS updates presented at ASH, highlighting promising therapies and clinical trial data that may help shape future care. Whether you’re newly learning about MDS or following ongoing research, this episode offers an accessible look at where things stand and what’s on the horizon. *This is not an official program of the ASH annual meeting DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Myelodysplastic syndromesInternational Prognostic Scoring System for MDSAmerican Society of HematologyHighlights from ASH vlogBlood cancer research 2026: Meeting patients where they want to be | blog post Additional Blood Cancer United Support Resources: Free Nutrition ConsultationsInformation Specialists Financial supportClinical Trial Support CenterOnline ChatFree telephone/web patient programs Free booklets Young Adult ResourcesSupport groups Caregiver support Caregiver WorkbookSurvivorship WorkbookAdvocacy and Public PolicyPatient CommunityMental Health Resources Episode supported by Geron Corporation and Taiho Oncology, Inc.The post The Bloodline Live! Myelodysplastic Syndromes (MDS) Updates in Research first appeared on The Bloodline with Blood Cancer United Podcast.
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    18 mins
  • Hope Meets Healing: Simple Practices for Stress Relief

    Hope Meets Healing: Simple Practices for Stress Relief
    Jan 14 2026
    Ann Grace MacMullan, C-IAYT

    In this episode, we sit down with Ann Grace MacMullan, Director of Integrative Wellness at the International Waldenstrӧm’s Macroglobulinemia Foundation (IWMF), to explore how wellness can become a powerful part of life after a cancer diagnosis. Ann Grace shares practical, calming techniques, including breathing exercises, “Bee’s Breath”, and guided meditation, that you can do anywhere to reduce stress and feel more grounded. We’ll also dive into what integrative wellness really means, why it matters for blood cancer patients, and how concepts like the “self-care sandwich” can help you start and end your day with intention.

    DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey.

    Mentioned on this episode:

    • Integrative oncology
    • Palliative care
    • How Do I Use Breathing To Manage Anxiety?
    • IWMF wellness videos
    • Integrative Oncology podcast episode
    • International Waldenstrom’s Macroglobulinemia Foundation (IWMF)

    Additional Blood Cancer United Support Resources:

    • Free Nutrition Consultations
    • Information Specialists
    • Financial support
    • Clinical Trial Support Center
    • Online Chat
    • Free telephone/web patient programs
    • Free booklets
    • Young Adult Resources
    • Support groups
    • Caregiver support
    • Caregiver Workbook
    • Survivorship Workbook
    • Advocacy and Public Policy
    • Patient Community
    • Mental Health Resources

    The post Hope Meets Healing: Simple Practices for Stress Relief first appeared on The Bloodline with Blood Cancer United Podcast.
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    46 mins
  • The Big Picture on Non-Hodgkin Lymphoma: Treatments, Trends, and Tomorrow

    The Big Picture on Non-Hodgkin Lymphoma: Treatments, Trends, and Tomorrow
    Dec 22 2025
    Jean Koff, MD, MSc

    Non-Hodgkin lymphoma (NHL) can sound overwhelming, but what does it really mean for patients and families? In this episode, we speak to Dr. Jean Koff of Winship Cancer Institute of Emory University, who breaks down the big picture of NHL: what it is, how it’s an umbrella term for multiple subtypes, and what today’s treatments and tomorrow’s innovations could mean for you. From understanding subtypes and staging to exploring options like watchful waiting, chemotherapy, and cutting-edge immunotherapies, we cover what matters most: knowledge, clarity, and hope.

    DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey.

    Mentioned on this episode:

    • Non-Hodgkin lymphoma
    • The Lymphoma Guide
    • Lugano staging system
    • Immunotherapy fact sheet
    • CAR T-cell therapy
    • Allogeneic stem cell transplantation
    • Clinical Trial Support Center
    • Online NHL Chat

    Additional Blood Cancer United Support Resources:

    • Free Nutrition Consultations
    • Information Specialists
    • Financial support
    • Free telephone/web patient programs
    • Free booklets
    • Young Adult Resources
    • Support groups
    • Caregiver support
    • Caregiver Workbook
    • Survivorship Workbook
    • Advocacy and Public Policy
    • Patient Community
    • Mental Health Resources

    Supported by AbbVie Inc. and Genentech, A Member of the Roche Group.

    The post The Big Picture on Non-Hodgkin Lymphoma: Treatments, Trends, and Tomorrow first appeared on The Bloodline with Blood Cancer United Podcast.
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    44 mins
  • Nutrition Made Simple: Helping Kids Thrive During Cancer Treatment

    Nutrition Made Simple: Helping Kids Thrive During Cancer Treatment
    Dec 12 2025
    Michell Fullmer, RDN, LDN, CSP, CNSC Nutrition plays a powerful role in supporting children through cancer treatment, but it’s not always easy for caregivers to know what’s best, especially when there are taste changes, appetite shifts, and treatment side effects. In this episode, we sit down with Michell Fullmer, a registered dietitian at Nemours Children’s Hospital, to share practical insights that simplify nutrition during cancer care, reduce mealtime stress, and empower caregivers to make choices that help their child feel better every day. Join us for myth-busting, actionable tips, and reassurance from an expert who has guided countless families through this important part of care. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Free Nutrition ConsultationsNemours Children’s HealthBlood Cancer United Dare To Dream ProjectNavigating Cancer for Children and Teens HealthyWeight.gov Additional Blood Cancer United Support Resources: Information Specialists Free telephone/web patient programs Clinical Trial Support CenterAdvocacy and Public PolicyFree booklets Financial supportYoung Adult ResourcesSupport groups Survivorship WorkbookCommunityCaregiver support Caregiver WorkbookMental Health Resources Supported by Nemours Children’s Health. The post Nutrition Made Simple: Helping Kids Thrive During Cancer Treatment first appeared on The Bloodline with Blood Cancer United Podcast.
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    39 mins
  • After Diagnosis: Finding Hope with Myeloproliferative Neoplasms

    After Diagnosis: Finding Hope with Myeloproliferative Neoplasms
    Nov 26 2025
    Abdulraheem Yacoub, MD In this episode, we are joined by Dr. Abdulraheem Yacoub of The University of Kansas Cancer Center to discuss myeloproliferative neoplasms (MPN), a group of rare blood cancers that affect how blood cells are produced. We explore what MPNs are, the most common types, and the signs and symptoms that lead to diagnosis. We also answer real questions from members of our MPN online chat community, covering topics like life expectancy, genetic mutations, and managing side effects. Finally, we discuss current treatment options, emerging therapies, and share a message of hope for patients and their loved ones. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Myeloproliferative neoplasms (MPN)MPN Online ChatMPN-SAF Symptom Assessment FormMPN Research Consortium Tissue BankBispecific antibody/immunotherapy fact sheetCAR T-cell therapy Additional LLS Support Resources: Free Nutrition ConsultationsInformation Specialists Free telephone/web patient programs Clinical Trial Support CenterAdvocacy and Public PolicyFree booklets Financial supportYoung Adult ResourcesSupport groups Survivorship WorkbookCommunityCaregiver support Caregiver WorkbookMental Health Resources Supported by PharmaEssentia USA Corporation.The post After Diagnosis: Finding Hope with Myeloproliferative Neoplasms first appeared on The Bloodline with Blood Cancer United Podcast.
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    55 mins
  • Supporting the Supporter: Real Talk for Caregivers

    Supporting the Supporter: Real Talk for Caregivers
    Nov 4 2025

    When cancer enters a family, it changes everything – routines, roles, and relationships.

    In this episode, we talk with Lindsey and Thomas Kealey about what it means to navigate cancer together as a care partner and patient. From unexpected diagnoses to months spent living in a hospital room, Lindsey shares how she balanced caregiving, work, and self-care while learning to hold space for difficult emotions. Together, they offer practical tips for caregivers, like creating healing spaces, communicating with care teams, and finding small moments of gratitude amid uncertainty. This heartfelt conversation is a reminder that behind every patient is someone quietly carrying so much and they deserve to be seen too.

    DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey.

    Mentioned on this episode:

    • Caregiver support
    • Caregiver Workbook

    Additional LLS Support Resources:

    • Free Nutrition Consultations
    • Information Specialists
    • Free telephone/web patient programs
    • Clinical Trial Support Center
    • Write it Out Journal
    • Advocacy and Public Policy
    • Free booklets
    • Financial support
    • Young Adult Resources
    • Support groups
    • Survivorship Workbook
    • Community
    • Mental Health Resources

    The post Supporting the Supporter: Real Talk for Caregivers first appeared on The Bloodline with Blood Cancer United Podcast.
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    51 mins
  • MRD Explained: What it Means for You and Your Care

    MRD Explained: What it Means for You and Your Care
    Oct 28 2025
    John Burke, MD MRD (minimal/measurable residual disease) testing is changing the way doctors understand and monitor blood cancers. In this episode, we talk with Dr. John Burke of the Rocky Mountain Cancer Center about how MRD testing works, what the results mean to patients and their care teams, and how ongoing clinical research is helping shape more personalized and hopeful approaches to treatment. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Minimal/Measurable Residual Disease (MRD) fact sheetMinimal/Measurable Residual Disease (MRD) chartCAR T-cell therapy Additional LLS Support Resources: Free Nutrition ConsultationsInformation Specialists Free telephone/web patient programs Clinical Trial Support CenterAdvocacy and Public PolicyFree booklets Financial supportYoung Adult ResourcesSupport groups Survivorship WorkbookCommunityCaregiver support Caregiver WorkbookMental Health Resources Supported by Adaptive Biotechnologies Corporation and Allogene Therapeutics. The post MRD Explained: What it Means for You and Your Care first appeared on The Bloodline with Blood Cancer United Podcast.
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    36 mins
  • Health Coverage for 2026 and Protecting Yourself from Medical Debt

    Health Coverage for 2026 and Protecting Yourself from Medical Debt
    Sep 29 2025
    Bethany Lilly Choosing the right health insurance plan can make all the difference in protecting your health and finances. In this episode, Bethany Lilly, Executive Director of Public Policy at Blood Cancer United, discusses important updates to healthcare insurance enrollment for 2026. Bethany explains what patients and caregivers need to know about changes to the Healthcare Marketplace and Medicare, how to avoid falling into medical debt, and the resources available to help you make informed decisions. Whether you’re reviewing employer coverage, Marketplace plans, or Medicare options, this episode will help you prepare with confidence. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Medical Debt Case Management (help choosing the right plan)How Do I? Insurance video seriesHealthcare.gov (Marketplace open enrollment)Medicare.gov (Medicare open enrollment)SHIP (State Health Insurance Plan)Get Involved: Renewing Enhanced Premium Tax CreditsAdvocacy and Public PolicyState MarketplacesOpen Enrollment Information Additional LLS Support Resources: Free Nutrition ConsultationsInformation Specialists Free telephone/web patient programs Clinical Trial Support CenterFree booklets Financial supportYoung Adult ResourcesSupport groups Survivorship WorkbookCommunityCaregiver support Caregiver WorkbookMental Health ResourcesThe post Health Coverage for 2026 and Protecting Yourself from Medical Debt first appeared on The Bloodline with Blood Cancer United Podcast.
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    35 mins