Showing results by author "Angie Schaeffer - Shawna Bailey" in All Categories
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Our Side of Rare
- Written by: Angie Schaeffer - Shawna Bailey
- Original Recording
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Our Side of Rare is a warm, honest conversation about the family side of living with rare. Mother-and-daughter hosts Angie and Shawna share two generations of perspective shaped by their family’s journey with Noonan syndrome. Shawna speaks as the mother of a child with Noonan syndrome, while Angie shares the view from beside them as a mother and grandmother. Together, they talk about diagnoses, doctors, surgeries, school, advocacy, caregiving, family relationships, hard days, funny moments, meaningful milestones and the victories worth celebrating. This is the next chapter of Noonan Syndrom
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