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MPN Pod: Stories from the Marrow

MPN Pod: Stories from the Marrow

Written by: BloodStream Media
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About this listen

MPN Pod: Stories from the Marrow is a podcast about Myeloproliferative Neoplasms (MPNs) and is intended for patients, caregivers, providers, and the greater community impacted by MPNs. Each episode, MPNPod: Stories from the Marrow strives to provide listeners with critical education, the latest scientific updates, and voices from the community. Transparency Statement: MPN Pod: Stories from the Marrow is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more. The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.2023 Hygiene & Healthy Living Physical Illness & Disease
Episodes
  • A 2025 Year in Review for Polycythemia Vera
    Jan 21 2026

    The Season 2 finale of The PV Pod: Stories from the Marrow takes listeners through a thoughtful year-end review, highlighting the most impactful insights shared by patients, caregivers, clinicians, and advocates. Kay and Josh revisit key themes like early symptoms, shared decision-making, and the power of self-advocacy, drawing on memorable moments from this year's guests. The episode also explores the importance of education, community support, and finding credible resources while navigating life with PV. Plus, the hosts offer a sneak peek at what's ahead in 2026.

    Transparency Statement:

    The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.


    The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

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    26 mins
  • Self-Empowerment & Polycythemia Vera
    Dec 10 2025

    On this episode of the PV Pod: Stories from the Marrow, Kay and Josh welcome Tracy Rode, CEO of the Patient Empowerment Network and a 15-year cancer survivor. Tracy shares her insights on self-advocacy, the importance of credible information, and how to navigate the challenges of living with a rare cancer like polycythemia vera. Listeners will learn practical tips for preparing for doctor appointments, finding support, and empowering themselves throughout their PV journey.

    Transparency Statement:

    The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.

    The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

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    28 mins
  • Managing Your PV and Mental Health
    Sep 24 2025

    On this episode of the PV Pod: Stories from the Marrow, hosts Kay and Josh are joined by Dr. Al Freedman, a psychologist and rare disease advocate, to discuss the mental health challenges faced by people living with polycythemia vera (PV) and other rare diseases. Dr. Freedman shares his personal story as a parent and professional, offering insights on coping with uncertainty, isolation, and the importance of community support. The conversation highlights practical strategies for managing mental health, both for patients and caregivers, and emphasizes the value of hope, resilience, and connection. Tune in for an honest and compassionate look at navigating life with a rare disease.

    Episode description will accompany podcast on podcast players.

    Transparency Statement:

    The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.


    The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

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    30 mins
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