Showing results by author "BloodStream Media" in All Categories

The Lung Lab is a podcast exploring how we are redefining rare and progressive lung disease. From how it is detected, to how it is measured, to how it is ultimately treated. Hosted by Elizabeth Estes, Executive Director of the Open Source Imaging Consortium (OSIC), the series brings together clinicians, scientists, and technologists working at the intersection of imaging, data, and disease. Each episode gets into the real challenges holding lung disease research back, including inconsistent measurement and fragmented data, and highlights the breakthroughs and the people emerging to solve them....

Your Podcast for Rare Kidney Conversations Life with a rare kidney disease can be complex, isolating, and often misunderstood. Rare Kidney Source brings together voices from across the community to inform, inspire, and connect people living with rare kidney diseases such as C3 glomerulopathy (C3G) and primary immune-complex membranoproliferative glomerulonephritis (IC-MPGN). Through honest conversations and expert insights, we explore the realities of diagnosis, disease management, and everyday life to empower listeners with knowledge, perspective, and a sense of belonging to navigate their ...

Content independently created by BloodStream Media. Novartis is our exclusive advertising partner. Introducing "PNH: Facts, Fiction & FYI," a limited series that unveils the enigmatic realm of Paroxysmal Nocturnal Hemoglobinuria (PNH). Join us as we journey through real stories, medical insights, and groundbreaking advancements, offering a comprehensive view of PNH. Explore the lives touched by this rare blood disorder and discover the intersection of facts, fiction, and must-know information. Get ready to embrace a newfound understanding of PNH.

En esta serie mensual entrevistamos a pacientes, familiares, científicos, investigadores y líderes hispanos en el mundo de las enfermedades raras, para que nos compartan sus historias, alegrías, desafíos y aprendizajes. Acompáñanos a compartir estas historias, desde la odisea del diagnóstico (¡hablando un idioma diferente!) a los conceptos erróneos en nuestra comunidad. Hablaremos de la diversidad cultural en los países de habla hispana e intentaremos comprender mejor los diferentes factores que nos afectan en el mundo de las enfermedades raras, con el objetivo de encontrar formas de...

MPN Pod: Stories from the Marrow is a podcast about Myeloproliferative Neoplasms (MPNs) and is intended for patients, caregivers, providers, and the greater community impacted by MPNs. Each episode, MPNPod: Stories from the Marrow strives to provide listeners with critical education, the latest scientific updates, and voices from the community. Transparency Statement: MPN Pod: Stories from the Marrow is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more. The following PharmaEssentia-supported program is intended for informational and ...

Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by thalassemia. Each episode strives to provide listeners with critical education, the latest scientific updates, and voices from the thalassemia community. Learn more about thalassemia by visiting RethinkThalassemia.com. Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram. Thal Pals is sponsored by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. This podcast is ...

What do you do when you've achieved your dreams only to realize- your work's just begun? In January of 2018, Chris Bombardier became the first person with severe hemophilia to complete The Seven Summits. It was the end of an adventure, and the start of a whole new chapter in Chris's life. From the team behind the documentary Bombardier Blood comes a podcast for adventurers, bleeders, and anyone who's ever chased a dream. Subscribe to BloodStream Media's The Final Summit wherever you get your podcasts. The Final Summit is made possible thanks to our featured advertiser, Genentech.

Cheat Codes is a podcast about sickle cell disease and is intended for patients, caregivers, providers, and the greater community of people who are impacted by it. Each episode of Cheat Codes: A Sickle Cell Podcast strives to provide listeners with critical education, the latest scientific updates, and voices from the sickle cell community. Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram. Cheat Codes: A Sickle Cell Podcast is sponsored by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. This podcast is ...

The Flow with BloodStream Media is a show for menstruating individuals who experience extreme bleeding, women with bleeding disorders, and those looking for more access to menstruation-health information.

Acute pain. Chronic pain. Physical pain. Emotional pain. Psychological pain. Spiritual pain. Pain is a part of life, it's everywhere, and it can be devastating. There are many tools, techniques, and resources for managing it, but what do we actually understand about pain? The Pain Podcast explores this and other pain-related questions. Subscribe now, and tell a friend about us! Produced by BloodStream Media. Presenting Sponsor: Tremeau Pharmaceuticals.

BloodStream is an entertaining and informational podcast for the bleeding disorders community. Each week, hemophilia patient Patrick James Lynch and former non-profit director Amy Board are joined by advocacy leaders, medical experts, and other guests to discuss the latest news, scientific advancements, policy initiatives, and so much more. Subscribe wherever you listen, or search BloodStream Podcast on YouTube to catch every episode there. Produced by Believe Limited. Presenting sponsor: Takeda.

Led by science, curiosity, and storytelling, the Global Hemophilia Report from BloodStream Media is an entertaining monthly journey through the investigations and science driving hemophilia research around the world. Produced by: Believe Limited & BloodStream Media Hosted by: Patrick James Lynch Senior Advisor: Dr. Donna DiMichele Featured Advertiser: Sanofi Genzyme #GHRpod #hemophilia #clinicalresearch #bloodstreammedia

The Payer Pod highlights the need for managing the high cost in healthcare by bringing payers, providers and advocates together to positively impact outcomes, lower overall spend, and improve the quality of care for patients. We’ll look at the Comprehensive Care Sustainability Collaborative from The National Hemophilia Foundation with Kollet Kouilanos, Senior Director of Payer Relations at NHF to show best practices.

Just Listen: Voices of PK Deficiency is a podcast about PK deficiency and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PK deficiency. Each episode of the Just Listen podcast strives to provide listeners with critical education, the latest scientific updates, and voices from the PK deficiency community. Learn more about PK deficiency by visiting KnowPKDeficiency.com or connect with KnowPKDeficiency on Facebook: bit.ly/KnowPKD. Join an inclusive community and build connections with other hemolytic anemia allies by following @...

Welcome to Gut Matters: Discoveries and Innovations, a podcast dedicated to helping IBS patients take back control of their symptoms and lives. Hosted by Johannah Ruddy, M.Ed., IBS patient advocate and researcher, and Dr. Andrea Shin, a gastroenterologist and IBS expert, this show dives deep into digestive health. Join us as we share inspiring patient stories, chat with guest experts, and deliver the latest insights on managing IBS—all with a dash of humor. Whether you're a patient or a healthcare provider, we've got something for you.