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Rare Kidney Source

Rare Kidney Source

Written by: BloodStream Media
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About this listen

 Your Podcast for Rare Kidney Conversations Life with a rare kidney disease can be complex, isolating, and often misunderstood. Rare Kidney Source brings together voices from across the community to inform, inspire, and connect people living with rare kidney diseases such as C3 glomerulopathy (C3G) and primary immune-complex membranoproliferative glomerulonephritis (IC-MPGN). Through honest conversations and expert insights, we explore the realities of diagnosis, disease management, and everyday life to empower listeners with knowledge, perspective, and a sense of belonging to navigate their journey with greater confidence and support. This podcast is intended for informational and educational purposes only and is not intended as medical advice. Always talk to your healthcare provider about questions you may have about the disease, its symptoms, and treatment.2026 Hygiene & Healthy Living Physical Illness & Disease
Episodes
  • The Road to Diagnosis

    The Road to Diagnosis
    Mar 26 2026

    From unexplained childhood symptoms to a life-changing diagnosis, this episode traces one patient's long road to understanding C3G, a rare complement-mediated kidney disease. Michelle Farley shares how years of dismissal, misdiagnosis, and crisis ultimately led to answers, a transplant, and a new era of targeted treatment. Dr. Carla Nester breaks down the science behind the "overactive alarm system" driving these conditions and explains how recent advances are transforming what was once considered untreatable. It's a story about persistence, partnership, and the power of finally being heard.

    For more information, visit rarekidneyandyou.com

    Transparency Statement: The Rare Kidney Source Podcast is produced by Believe Limited and made possible by Apellis Pharmaceuticals.

    The following Apellis Pharmaceuticals-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.
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    26 mins
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